@aaronesilvers@jawns.club cover
@aaronesilvers@jawns.club avatar

aaronesilvers

@[email protected]

Producer. People Developer. Public Servant. Good dude.

Cubanx. Autistic. Dad. He/Him/Jawn/Youse

Love languages: disc golf, live music, smoked meats, coffee, weed and rye. Writes, sings, drops bars and beats, plays bass + keytar.

Generally kicks ass. Clutch Quizzo team member.

Chicago-based, Forever Philly

This profile is from a federated server and may be incomplete. View on remote instance

aaronesilvers , to ActuallyAutistic group
@aaronesilvers@jawns.club avatar

If Boomers would've identified on the spectrum and dealt with their shit instead of projecting their self-loathing on everyone else, we’d never run out of meds, much like we don't normally see pharmacies running low on cholesterol meds or insulin.

Not a problem for me, yet, but it's a real problem for too many people I know. @actuallyautistic @actuallyaudhd

aaronesilvers , to ActuallyAutistic group
@aaronesilvers@jawns.club avatar
theautisticcoach , to ActuallyAutistic group
@theautisticcoach@neurodifferent.me avatar

Autistic masking leads to significant harm to an human's sense of identity & mental health

It is a survival strategy that forces us to prioritize NT expectations over authentic self-expression, often leading to profound self-alienation & diminished self-worth.

@actuallyautistic

aaronesilvers ,
@aaronesilvers@jawns.club avatar

@calispera @theautisticcoach @actuallyautistic if no one has responded... yes, you should def figure out for yourself how/when/where to unmask and stim... not so much about feeling "autistic" so much as feeling “yourself”

The unmasking is the getting down to just "you.”

The stimming is to burn off all that excess autistic magic energy you have within you because we know you contain multitudes.

Figure out what gets/keeps you in a flow state; you unlearned it when you learned to mask.

ashleyspencer , to ActuallyAutistic group
@ashleyspencer@autistics.life avatar

For AuDHD:

Which terms do you prefer to use?

Do you use ‘have’ or ‘I am’ to describe your autism and ADHD?

Personally, I’m the first one and use ‘I am’ to describe both.

Just curious to see how common each one is. 🙂

@actuallyautistic
@audhd

aaronesilvers ,
@aaronesilvers@jawns.club avatar

@ashleyspencer @actuallyautistic @audhd

I am forming an information architecture that models in text and conversations how to explain how all these things related to neurodivergence are related in a way that at least encapsulates the general complexity.

Autism, “on the spectrum”, “neurospicy" (my favorite) are almost interchangeable with NTs. ADHD might be any number of sensory issues... there's an attention thing, there's a "can't stop thinking/doing" thing that manifest similarly to observe

aaronesilvers ,
@aaronesilvers@jawns.club avatar

@ashleyspencer @actuallyautistic @audhd …and, maybe, to some general degree, we can describe at least some of the sensory disconnects that manifest as AuDHD with existing researched/defined conditions:

  • Alexithymia is a condition that describes what’s going on with 1-in-10 people who have challenges with their awareness of, ability to identify and describe feelings.
  • Interoception challenges, which are related to gaps in ability to identify and describe one’s physical/body senses.
CynAq , to ActuallyAutistic group
@CynAq@neurodifferent.me avatar

@actuallyautistic

I have issues with the "top-down ( purported to be most NTs)" and "bottom-up (purported to be most autistics)" thinking binary.

I don't think these labels identify the differences as I believe this is an issue of motivation and value judgement.

Let's take the common example of essay writing for school. The story goes "when they asked us to write an outline, the NT students got right on it while the ND kids were bewildered because how could they write a bullet point version of an essay that didn't exist yet."

This makes intuitive sense to everyone who experienced the frustration of being asked to write that outline so we connect over this and give this as an example of our "thinking style" difference from the NT population.

If we actually think about this a little, though, the example, while a common experience, doesn't actually demonstrate how our thinking differs.

First, NTs and NDs both need to acknowledge the concept of an essay. If we then say "the NTs get right on writing the outline when asked to do so, which means their brain started from the concept of an essay, then automagically filled it out with a list of section titles, then guided their person through the acts necessary to fill out those sections," does this sufficiently explain what is happening? After all, the ND people can write research essays, and without coming up with an outline first too!

I think there's something deeper going on here. I think, the main difference is priorities, not the method of thinking.

In my opinion, when asked to write an essay, most NT people respond by asking "why" or even "what's in it for me" first, and since the school structure pre-answers that question for them, move onto "how," which is also formalized for their convenience: "start by thinking of possible questions and reword them as titles, put them in a list. This way, you won't have to experience the inconvenience of being curious for once." The entire process is optimized for form over substance.

In the same situation, putting the curiosity first, most ND people respond by "<insert every question possible>", and concluding "I'm going to start looking into it." No instruction necessary because the ND brain here optimized the question asking part of the endeavor. The information will be gathered and new questions will form and then more information will be gathered until there's too much of it and..." Yeah... "why are we doing this again?" Notice the "how" isn't very important here, even though it's included in the "every question possible" because after all, what can be more natural than making observations and learning other people's observations and then putting them into a report of facts? Substance rules, and form will emerge as a necessity.

So, I like thinking about "substantial (substance first)" and "formal (form first)" modes of thinking rather than "bottom-up" vs "top-down".

If you're still reading, thanks!

I'm curious as to what everyone else thinks about this issue :)

aaronesilvers ,
@aaronesilvers@jawns.club avatar

@eestileib yo... this is so profound and so sublimely stated, i'm gonna sit long with this post. cc: @joshsusser @CynAq @actuallyautistic

pathfinder , to ActuallyAutistic group
@pathfinder@beige.party avatar

@actuallyautistic
@actuallyadhd

After joining a post by Niamh Garvey (hopefully a successful link to it below) about whether she had adhd as well as autism, I have spent the last couple of days contemplating this idea for myself as well.

I am still not entirely convinced, but I am beginning to suspect that I might well be in this situation as well. After watching a number of YouTube videos from those with both autism and adhd and reading up on adhd, I can see a number of things that point on that direction certainly, although I'm not entirely convinced.

I have always been aware of the near overwhelming urge to either interrupt people, because there is something I want to say and if I don't then, then I know there is a more than a reasonable chance that I will forget what it was. I also have a tendency to want to finish people's sentences. Both of these things though I have taught myself to resist. Even though I feel a great deal of discomfort doing so. I am also more than aware that I can forget what I was saying, or thinking, halfway through a sentence. That digging through the trash to find the package with the instructions on, that I only just threw away after reading, is not uncommon. As is failing completely to understand or remember the instructions someone just gave me.

But then, my short term (working) memory is basically non-existent. But, I'm also aware that this is a fairly common problem for autistics and even before I realised I was autistic, I built up systems to help myself deal with this. As well as with my general forgetfulness. Lists, memory aids, even making the route out of my flat a trip hazard to make sure I don't forget to take something with me. Also, I live alone and essentially there is a place for everything and everything has its place. Not foolproof and I have lost things in a very small flat that I still haven't found. But generally speaking effective.

I struggle to start tasks, especially tasks that I have no real interest, or desire to do. Being interested in something has always been my main motivator. But eventually, I can normally force myself and work my way through things, especially if I know they are necessary. Knowing I have this problem is also why I hate leaving things to the last moment. I know that I am more than capable of doing that if I allow myself, but also that the stress from doing so is nearly overwhelming, even if it can be motivational. As is the stress of clutter. Not the organised clutter that is my flat, where I know where everything is, as in somewhere in that pile over there, but the clutter that builds up eventually and begins to feel as if it is out of control.

Novelty is a factor in my life. Or, boredom, rather. Because sooner, although far more likely later, I will grow bored with routines, or things like safe foods, and need to change them. Many of my interests also seem to suffer from a similar threshold. A certain point where I lose interest and no longer feel any need to maintain them, even though this might make me feel guilty about giving up on them. In fact, I hate boredom and I have always needed a certain amount of new things to watch, or discover and to be actively doing stuff, if only in my head. And whilst I have never thought of myself as being particularly spontaneous or impulsive. I am, within certain limits of self-control. There is a rationality that often has to be appeased that gives me a sense of control. I have also taken stupid risks and great risks. But rarely beyond what I knew was necessary, or to my mind, at least, controlled to a point.

I can be easily distracted, by random thoughts or by, (well obviously not squirrels, I mean who would be? but, oh, oh, there's a butterfly) things. But not always to the point that I'm not at least marginally still aware of what I should be paying attention to. Letting myself wander whilst maintaining at least a marginal awareness is an old trick of mine. I have always been a fidgeter, but that's also how I maintained concentration. Feeling the overwhelming need to move, has always seemed to me to be anxiety driven, or is the way I focus and think. In fact, movement for me has always been as much about settling and regulating myself, as it has been compulsive.

As I said, there are certain things that seem to fit, even if they also seem to have been effected and possibly modified by my autism. I would love to hear your thoughts.

https://beige.party/@[email protected]/112390279791932822#

aaronesilvers ,
@aaronesilvers@jawns.club avatar

@Zumbador @andrewhinton @miaoue @actuallyautistic @pathfinder @actuallyadhd it helps to have words to frame things when I lack words... i've had to learn many hard ways that using existing taxonomy to frame things is only helpful if everyone uses the same, otherwise at some point, i may need to do another pass at information architecture, re-sort things anew, to help make sense, in snapshots, of change

aaronesilvers ,
@aaronesilvers@jawns.club avatar

@Zumbador @andrewhinton @miaoue @actuallyautistic @pathfinder @actuallyadhd TL;DR: categories are a railing in a storm to help us brace; when we use them as a crutch to get around, they tend to get more brittle over time and that can contribute, eventually, to meltdowns and burnouts bc reality doesn't fit with the framing we're leaning on

Coffeemug , to ActuallyAutistic group
@Coffeemug@mindly.social avatar

@actuallyautistic Has "Autism & PDA" ever been talked about here? I can't find anything on it short of web searches. It seems to be a trait of Autism that's prevalent. It sure seems to apply to me.

aaronesilvers ,
@aaronesilvers@jawns.club avatar

@Coffeemug @actuallyautistic admittedly, i googled because i was like “public displays of affection?”

In terms of pathological demand avoidance, I don't think this applies to me, but I do have challenges with executive functioning. I just don't have it, like, all the time, over everything.

Like, this last week, getting myself to review and respond to a draft marital settlement agreement... that took so many spoons. I avoided it for like two weeks but after a few days in a good place, i could

aaronesilvers ,
@aaronesilvers@jawns.club avatar

@Coffeemug @actuallyautistic my sensory disorder may be hiding from me just how prominent this is...

aaronesilvers , to ActuallyAutistic group
@aaronesilvers@jawns.club avatar

TFW alone time flexes and compresses between feeling like eternity until there's not enough of it. @actuallyautistic @neurodiversity

pathfinder , to ActuallyAutistic group
@pathfinder@beige.party avatar

@actuallyautistic

Autistic brains be stupid. Well, obviously not stupid, they just seem to work, or not work, in mysterious ways.

The main one that has always got me, about mine, is that I have no memory for sound, absolutely none. I can't remember a song, or a sound. I can't remember what my parents sounded like and none of my memories carry, for want of a better word, a soundtrack. I can remember what I was thinking and what others were saying, but not hearing them say it, nor any other sound. I also don't dream in sound, at least as far as I know. All my dreams are silent.

And yet, and it's a big yet. I have an excellent memory for voices and sounds. Like many autistics I have near perfect pitch, at least when I'm hearing others sing, or music playing. Just don't ask me to reproduce it, because I can't. If I meet someone I haven't met for a while, then I will almost certainly not recognise their face, or remember their name, but there is a very good chance that I will recognise them from their voice. I am also very good at detecting accents. Even the slightest hint of one in, say, an actor pretending to be an american, will get me searching Wikipedian to see if I am right about their actual nationality.

So, if I can tell the sound of a Honda CBR engine two blocks away, or a voice, or an accent buried deep, I must have the memories to compare against. And yet... nope.

So, as I said, autistic brains be stupid.


aaronesilvers ,
@aaronesilvers@jawns.club avatar

@alexpsmith @pathfinder @actuallyautistic i don't know that I can call what I have an eidetic memory, but of the things I can recall, music and lyrics are among the few things I can recall with striking clarity.

I've learned from a friend of a different flavor of neurodivergence in which eidetic memory is tied closely to emotion, and in this way i can connect the dots between how music is a special interest and outlet for complex feels… and how music can resonate with me in a way that sticks...

aaronesilvers ,
@aaronesilvers@jawns.club avatar

@alexpsmith @pathfinder @actuallyautistic I remember thinking when i was getting diagnostic testing for autism, we got to the short term memory test and i did so terribly, as i often do trying to remember stuff...

but i also remember thinking if she would've sang the things she was testing me on i'd probably have nailed it

aaronesilvers ,
@aaronesilvers@jawns.club avatar

@pathfinder @bhawthorne @olena @actuallyautistic @devxvda not that i want to derail this thread... but have y'all been watching , specifically with regard to the Jean Grey/Madelyn Pryor plot thread where because of Jean's super psychic powers, she can't distinguish between her memories and her clone’s… to which one asks "does it matter if you actually gave birth if you can remember the pull of your child's tears to soothe and love him?”

I have moments like this lately post-separation

aaronesilvers ,
@aaronesilvers@jawns.club avatar

@pathfinder @bhawthorne @olena @actuallyautistic @devxvda ...specifically holidays alone in my apartment, i struggle between a new life in Chicago and being pulled right back to just months ago when I was (not happily, but still) married for all these years and, being such, was part of very different activity levels and vibes around holidays.

Has me now preparing for what might be a really difficult 4th of July having been basically the mayor of the 4th of July in my town the last few years

catswhocode , to ActuallyAutistic group
@catswhocode@mastodon.art avatar

@actuallyautistic @actuallyadhd I know this isn't specifically an autistic/ADHD trait, but I have a lot of trouble remembering people's names. Usually I have to write down the name, take a picture of it, or make an association that sticks. Does this happen to any of you too?

aaronesilvers ,
@aaronesilvers@jawns.club avatar

@pathfinder @catswhocode @actuallyautistic @actuallyadhd i think this depends a little on what part of the spectrum we're on. Folks with eidetic memory (like photographic memory but rooted in emotional context of the moment) rock at memory, but can be trapped by it in other ways https://www.sarahgeringer.com/photographic-memory-high-sensitivity-grief/

  • All
  • Subscribed
  • Moderated
  • Favorites
  • kbinchat
  • All magazines