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sunbrrnslapper

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Surban mom.

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sunbrrnslapper , (edited )
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Anything by Supertramp or Bad Company.

sunbrrnslapper ,
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I am not on the spectrum (I follow the community because I have 2 kids on the spectrum). I did, however, go to high school and also thought I was smarter than everyone else. I was probably smarter than some people. But as I've grown up, my perspective has shifted: (1) smarts are genetic, like being pretty, and both are like winning the genetic lottery. In contrast, people who work hard have earned it. (2) Being academically gifted does not always translate into success later in life. EQ, hard work and luck also play into it. Anywho, I thought I would pass that along because I'm not so sure you are a narcissist, but maybe just haven't had as much experience. Best of luck to you!

sunbrrnslapper ,
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This is also my impression of some billionaires. I found this article about the work ethic of some famous people: https://www.inc.com/business-insider/work-ethic-of-super-successful-people.html

sunbrrnslapper ,
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I think they were including things like travel and executive meals/networking as work time in the hours worked per week. I also assume these people really like their work (more like a hobby), which I can see making it easier to put in the hours. And at some point they can probably afford to pay for things that most of us do in our off hours (cook, clean, sit in traffic). So the numbers are definitely greater than butt in chair time.

sunbrrnslapper , (edited )
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That like 5 hours per night with 20 min to shower/get ready. Not great, but it can be done by taking meetings during your commute into work, having food delivered and eating/working at the same time. I assume that lady didn't have kids during her time at Google (when she was working those hours).

Edit: Marissa Mayer did not have kids during her time at Google. She had her first after she'd moved to Yahoo. There are no mentions of her hours there, so I assume they were less (not as fun to put into the article)

sunbrrnslapper ,
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I mean, it says "people would work as much as 130 hours in a week, including an all-nighter", so I don't read it as being consistent, nor always her. And the all-nighter was singular.

Edit: forgot to mention that this article is objecting to her formula for success, not her claims about working that many hour as being impossible.

sunbrrnslapper ,
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Are you recommending I put poison in my mouth?

sunbrrnslapper ,
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Oh, thanks for the clarification.

I'm one of those weirdos that likes to work (like I would still work 12 hour days if I won the lottery), even if I wouldn't expect others to do the same. So this type of article is relatable. Didn't mean to imply that others needed to work this way.

sunbrrnslapper ,
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sunbrrnslapper ,
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They are super high quality, made in the US and are actually a good company - so at least your money is well spent. It's a solid investment.

sunbrrnslapper ,
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M, T, Th, F: work from home, have lunch with my husband (if work schedule allows), play with kids when they get home from school

W: work from home, have lunch with my husband (if work schedule allows), badger kids to do music therapy, play with kids

Sa: business meeting with my dad, play with kids, nap, grocery shopping

Su: play with kids, nap, play with kids

I'm in charge of all adhoc things outside of the house and financial. Husband is a stay at home parent and does all the home stuff.

sunbrrnslapper ,
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I don't know because I'm in the US, but does universal healthcare in other countries cover autism-related therapies and care such as ABA, occupational and speech at the rates recommend by docs (our docs recommended 20+ hours/week - or roughly the cost of $100k/year)? And is that factored into the equation?

I haven't seen the official modeling, just assumptions around the internet. But back of the napkin math suggests that appropriate autism care alone could be quite high: 1/36 of the 341,500,000 American residents have autism. Assuming 15% need care in the range of $100k, would be somewhere around $138b/year for just autism care. Does that seem in line with what you are thinking? Either way, are you able to point me to some of the modeling you have found? I'd love to learn more about how it tactically works.

sunbrrnslapper ,
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Man, I wish the hundreds of thousands of dollars of care we got positioned my kids into the workforce. Our reality is that all that while the care did help and make their lives much better - it won't translate into productivity or self sufficiency. 🙁 I am super worried that will practically mean a universal healthcare system in the US limits disability care because it isn't deemed as having a good enough ROI.

sunbrrnslapper ,
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My kids are real life examples demonstrating that huge investment, while good for the individuals, does not reduce the cost or burden of them to society later in their life. And that very concept could risk society's willingness to pay for any disabled person's full care under universal healthcare.

sunbrrnslapper ,
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I just estimated that 15% need care. So that would leave a huge number that don't - you are right.

EDIT: A quick Internet search says that 82% of autistic adults want or get support, and only 16% are fully employed. 🤷

sunbrrnslapper ,
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No, it is from unfortunate personal experience. Special needs families get the short end of the stick in a lot of ways - ours included. Feel free to IM me about it if you want specific anecdotes. After killing myself to get my kids what they need (navigating insurance denials, waiting lists for specialists, underfunded and confusing government programs, lack of childcare, hitting out of pocket maximums year after year, and taking jobs that leave me exhausted and with little family time to pay for it all), I have a huge defense mechanism for anything that sounds like it can quickly and easily solve this kind of situation - because I've been repeatedly shown it is a pipe dream. It doesn't mean UHC isn't a noble cause or the right way to go. But the reality is that it probably won't be much of a qualitative change for families like ours. And it is hard to hear that our experiences and fears are not valid.

sunbrrnslapper ,
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You are right, which is why I used 15%, instead of 82%.

sunbrrnslapper ,
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20+ hours of anything is costly if you are paying the therapists appropriately. The issue is that their work is 1:1 and doesn't scale easily.

sunbrrnslapper ,
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Fair, take that piece out of the equation. Our docs still advised us on 20+ hours of therapy, all of which is costly.

sunbrrnslapper ,
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So, you totally hit the nail on the head. I couldn't agree more: It is about maximizing resources for overall good. It is just that some groups may not see a qualitative difference in care.

sunbrrnslapper ,
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Nothing, back of the napkin math for discussion purposes based on the 2 diagnosisea and doc recommendations we've gotten. Totally can adjust if you have a more accurate number.

sunbrrnslapper , (edited )
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Thanks for saying that. 🙂

EDIT: I responded in a way that was not helpful below and I've fixed it now...

I would tear off my right arm to have a robust enough safety net to take care of my kids adequately (and thanks to UHC in that situation, I would live thru it!).

sunbrrnslapper ,
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My kids don't have full language capabilities, they struggle with fixations (which means learning has to be customized to their fixations or it won't happen), and they don't have enough situational awareness to be safe.

So, therapies are helpful in getting them enough language to have basic needs met (and minimize behavior issues), practicing doing things they don't prefer for short bursts and learning things like how to behave in a parking lot. We may never get to productivity or self sufficiency - we are focused on staying alive.

sunbrrnslapper ,
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Probably would be - age plays into it as well. My kids are pretty impacted - minimal language, safety issues, etc. I suspect it can vary widely.

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