rebekka_m

olena , 3 days ago to ActuallyAutistic group

Just realized that spending time with people I know, including - no, especially! - family, drains me out so much not because of all the activities, noise, planning and plans being neglected and all those things, but because of masking. Like, 95% of my energy goes to masking, to staying within acceptable range. Internalizing the meltdown that happened because of being overwhelmed takes more energy than actually dealing with being overwhelmed. Having plans established when I offered going without a plan, than changed, than cancelled, than uncancelled, than changed again and the day ruined is hard, but being smily and kind and attentive, and fun and creative after that is much more draining.
I know why most of us hate being observed: because if observed, we have to mask harder - so instead of doing the task itself and dedicating all of us to it, we have to use a lot of energy to constantly control the way we’re perceived to make sure the mask didn’t slip.

#AuDHD
#neurodivergent
#autistic
@actuallyautistic

olena , 3 days ago to ActuallyAutistic group

“Don’t assume, ask” - is the approach I share. However, there are many people to whom asking seems like something rude and inappropriate. And those people would assume.
The thing is, I am one of those people that usually can’t be accurately assumed: if you’d think a person that does this and this would also do that, the one who likes this and this would hate that and so on - most probably, I’d not follow that pattern. For that very reason I’ve been called ‘eclectic’, or less politely - ‘messy’, ‘illogical’, and all sorts of weird - most of my life, and for that very reason some people are kinda afraid of me: they can’t predict because their assumptions aren’t correct.
In turn, for me it’s very frustrating/confusing to see that someone is offended by me asking directly instead of assuming because all I want is to avoid any misunderstanding and clarify things.
I feel like #AuDHD is quite an eclectic thing per se(due to some #autism aspects looking from a certain point of view as opposite to those of #ADHD), so maybe that is the key to me being so, well, contradictory in eyes of other people.
I wonder, if that asking is just #autistic desire to have things clear and precise, or assuming/asking divide does not correspond to the NT/ND one
#neurodivergent
@actuallyautistic

rebekka_m , 5 days ago to bookstodon group

Just finished Eileen by Ottessa Moshfegh and as the other books she'l has written that I already read it's amazing.

All the trigger warnings, and it contains all the different sparks of glittery darkness, lonely people that happen to be born under the wrong circumstances in the wrong environments.

#bookstodon @bookstodon

rebekka_m , 5 days ago to bookstodon group

"So I flatten myself and the car starts again, and for the next few minutes I see nothing. [.] He has considerately moved his feet to give me room. Nevertheless my forehead is against his shoes. I have never been this close to his shoes before. They feel hard, unwinking, like the shells of beetles: black, polished, inscrutable. They seem to have nothing to do with feet."

The Handmaid's Tale, Margaret Atwood [1985]

Almost finished my 2nd reading, still one of my 🌟🌟🌟🌟🌟.
#bookstodon @bookstodon

rebekka_m , 15 days ago to bookstodon group

The Rincewind stuff by #Pratchett does not get me, I am sorry. Managed my way through the series including/up to "Eric" and no, this one was the worst, I am done with Rincewind. Much too stereotypical, whimsy, uncapable and yet involuntarily "funny" Male Of The 80ies.

Now will dive into the industrial revolution series, starting latest Friday with "Moving Pictures" :), as an audio book, like the others.

Any Opinions?

#bookstodon @bookstodon

ashleyspencer , 1 month ago to ActuallyAutistic group

Autistic burnout + untreated ADHD =

impulse control issues + inability to force yourself to do anything + drained by no ability to function

Lots of walking pass a mess unable to make yourself clean it, then blame yourself for it.

Distracted, can't focus enough to do fun things and/or take care of yourself.

Forgetting everything. So burned out you can't remember important things + made worse by ADHD.

1/3

@actuallyautistic
#AuDHD

rebekka_m , 1 month ago to bookstodon group German

Gestern hab ich The Sudden Appearance of Hope [2016] von Claire North beendet [gut, aber nicht revolutionär], heute starte ich mit einem im voraus faszinierenden, hoffentlich nicht zu viel versprechenden Buch:

Mütter Europas - Die letzten 43000 Jahre [2022] von Karin Bojs

#bookstodon @bookstodon

dyani , 1 month ago to ActuallyAutistic group

I can tell when I need to lower the volume of something I'm listening to when I feel a kind of tightening in my ear muscles, and/or ringing in my ears, or a slight feeling of stress coming in from my environment.

I also just try to remember to always proactively lower the volume a couple ticks from what i first set it at, to prevent all those sensations.

What are the signs for you that things are a little too loud?

@actuallyautistic
#actuallyAutistic

CynAq , 1 month ago to ActuallyAutistic group

@actuallyautistic
#ActuallyAutistic

I have issues with the "top-down ( purported to be most NTs)" and "bottom-up (purported to be most autistics)" thinking binary.

I don't think these labels identify the differences as I believe this is an issue of motivation and value judgement.

Let's take the common example of essay writing for school. The story goes "when they asked us to write an outline, the NT students got right on it while the ND kids were bewildered because how could they write a bullet point version of an essay that didn't exist yet."

This makes intuitive sense to everyone who experienced the frustration of being asked to write that outline so we connect over this and give this as an example of our "thinking style" difference from the NT population.

If we actually think about this a little, though, the example, while a common experience, doesn't actually demonstrate how our thinking differs.

First, NTs and NDs both need to acknowledge the concept of an essay. If we then say "the NTs get right on writing the outline when asked to do so, which means their brain started from the concept of an essay, then automagically filled it out with a list of section titles, then guided their person through the acts necessary to fill out those sections," does this sufficiently explain what is happening? After all, the ND people can write research essays, and without coming up with an outline first too!

I think there's something deeper going on here. I think, the main difference is priorities, not the method of thinking.

In my opinion, when asked to write an essay, most NT people respond by asking "why" or even "what's in it for me" first, and since the school structure pre-answers that question for them, move onto "how," which is also formalized for their convenience: "start by thinking of possible questions and reword them as titles, put them in a list. This way, you won't have to experience the inconvenience of being curious for once." The entire process is optimized for form over substance.

In the same situation, putting the curiosity first, most ND people respond by "<insert every question possible>", and concluding "I'm going to start looking into it." No instruction necessary because the ND brain here optimized the question asking part of the endeavor. The information will be gathered and new questions will form and then more information will be gathered until there's too much of it and..." Yeah... "why are we doing this again?" Notice the "how" isn't very important here, even though it's included in the "every question possible" because after all, what can be more natural than making observations and learning other people's observations and then putting them into a report of facts? Substance rules, and form will emerge as a necessity.

So, I like thinking about "substantial (substance first)" and "formal (form first)" modes of thinking rather than "bottom-up" vs "top-down".

If you're still reading, thanks!

I'm curious as to what everyone else thinks about this issue :)

niamhgarvey , 1 month ago to ActuallyAutistic group

Doctor suggested I have #ADHD but I don't think I do because:
I am able to force myself to do things even if I'm not interested in it.
I do not like spontaneity.
When I have a deadline, I cannot leave it to the last minute or anxiety would cripple me.
But I do struggle to pay attention unless am hyperfocused. And I do have executive function challenges. And I have to have a project. And I crave dopamine hits.

Anyone else similar to that?
@actuallyautistic
@actuallyadhd

SaySimonSay , 1 month ago to ActuallyAutistic group

I keep going back to this situation in a previous job where the boss said that he'd invite us for a drink at the local funfair and give us the afternoon off if we joined him.

Everybody joined, so I did as well.

It was a hot summer day. The funfair was empty, but huge, noisy and overwhelming. Also, I hated the boss who egged us on to go on one of the rides. I would now say that I quickly reached my sensory threshold.

At some point, me and a coworker wandered off. We walked on until we reached the exit, then made the split-second decision to leave without saying goodbye.

The next day I was summoned by the boss and interrogated why I had left early without saying goodbye. Ashamed of myself, I mumbled some vague excuses.

I would try to handle the whole situation differently now, but back then I didn't know what was going on and I didn't have the right words. Am I still ashamed? Yeah, maybe a bit, but I'm trying to let myself off the hook. I just didn't know any better.

#ActuallyAutistic @actuallyautistic

pathfinder , 1 month ago to ActuallyAutistic group

@actuallyautistic

Autistic brains be stupid. Well, obviously not stupid, they just seem to work, or not work, in mysterious ways.

The main one that has always got me, about mine, is that I have no memory for sound, absolutely none. I can't remember a song, or a sound. I can't remember what my parents sounded like and none of my memories carry, for want of a better word, a soundtrack. I can remember what I was thinking and what others were saying, but not hearing them say it, nor any other sound. I also don't dream in sound, at least as far as I know. All my dreams are silent.

And yet, and it's a big yet. I have an excellent memory for voices and sounds. Like many autistics I have near perfect pitch, at least when I'm hearing others sing, or music playing. Just don't ask me to reproduce it, because I can't. If I meet someone I haven't met for a while, then I will almost certainly not recognise their face, or remember their name, but there is a very good chance that I will recognise them from their voice. I am also very good at detecting accents. Even the slightest hint of one in, say, an actor pretending to be an american, will get me searching Wikipedian to see if I am right about their actual nationality.

So, if I can tell the sound of a Honda CBR engine two blocks away, or a voice, or an accent buried deep, I must have the memories to compare against. And yet... nope.

So, as I said, autistic brains be stupid.

#Autism
#ActuallyAutistic

LehtoriTuomo , 1 month ago to ActuallyAutistic group

I've been trying to understand what it means that an autistic brain is bombarded with so much information. We spent some time at our summer cottage and I think I got some insight in this.

Instead of seeing the lake in front of my eyes, everywhere I looked I saw a detail. Its size would vary but it would still be a detail. A swan there, its partner there, no leaves on that tree yet, what a cool pattern on the small waves, what does it look like when I move my eyes this way, or that way, a car on the opposite shore, the shadow of the tree, I wonder what seagulls those are etc. A new detail with every single glance.

At the same time my attention tried to keep track of the dog and listened to birds singing and bumblebees flying around.

Now I wonder what it feels like just to see the lake.

#ActuallyAutistic @actuallyautistic

rebekka_m , 1 month ago to ActuallyAutistic group

Just in case you'd like to watch a very motivating video and person talking about thinking, words, and linking, you MUST have a look at @nickmilo rambling about one of his special interests here - really got me elevated:

https://www.youtube.com/watch?v=byLXCTVXSpE

Seems to me as if this could be of interest to many of you @actuallyautistic :)?!

kkffoo , 1 month ago to ActuallyAutistic group

@actuallyautistic I have managed to get involved in a community for a particular game and not been asked to be a moderator in the social space, this is quite an achievement for my developing unmasked genuine grumpiness :)

pathfinder , 2 months ago to ActuallyAutistic group

@actuallyautistic

I once wrote about how it was not unrealistic, to think that there was no such thing as an un-traumatised autistic. About how so many of us have known bullying and persecution simply for being different. Not even always for what we may have said or done, but often for simply standing out; in all the ways that we didn't even know we were. How just simply being, was so often an excuse to be attacked or punished. That our very existence, even as hard as we tried to mask, whether we knew that was what we were doing or not, was the cause of so much pain.

All the scars we carry from misreading situations. Or from believing in something, or someone, and being burnt as a consequence. All the times we've tried to stand up for ourselves, or as often as not for others, and been dismissed and ridiculed. All the misjudgements and disbelieve and times when our intent and purpose have been seen in the ways that were never, ever, meant. The sheer inability for others to see us as we are, or to judge us accordingly. But, always to seem to want to see the worst and to base everything else on that.

But the more I learn and understand about being autistic. The more I realise that so much of my trauma and the scars that were left, came not just from this overt pain, but from the covert well-meaning of others as well. From my parents and relatives, from friends and teachers. From all the advice and instruction I have received over the years that was meant to shape me in the right way. As a child, to teach me how to grow up, how to behave and act. What was expected and what wasn't. And then, as an adult, how I was supposed to be and how a successful life, with me in it, was supposed to look. All the rules I was supposed to learn, all the codes I was supposed to follow. How to act, how to speak, what to feel, when to feel it. What I was supposed to do and how I was supposed to be.

Not in any unusual way. Not in any way that you weren't supposed to raise a child, well a normal child anyway. That's what makes this so covert. If you were trying to do this to a child knowing that they were autistic, then it's overt abuse. It is ABA, it is infantilising and punishing a child for always failing to become something, that they had no more chance of becoming than a cat has of becoming a dog. But for those of us who didn't know we were autistic. It was simply the constant hammering of the world trying, without even realising it, to fit a round peg into a square hole and all the pain and disappointment that came from their failure to come even close.

For me, what made this worse, was that it wasn't as if I didn't know that I was different, not in my heart, but that I thought that I shouldn't be. That I should be able to learn what I was being taught, that I should be able to follow the guidance. That I wasn't any different really from anyone else and so if I failed to act in the right way, or react the way I should, for that matter, then it was my fault. All the patient sighs and familiar looks, simply became just another reinforcement of my failure. Even being told off for the simplest things, became a reminder that something that I should have been able to do, was beyond me and always for the only reason that ever made any sense; that I was broken, that it was my fault somehow.

Is it any wonder that so much of my life has been about trying to justify myself in the light of this, of trying to become that "good dog". Of judging myself against an impossible standard. A constant lurching from one bad to choice to another, and always because I thought they were the right ones. And for each new failure and inability to even come close, another scar, another reminder of what I wasn't. Further proof that my self-esteem was right to be so low. Of how I was such a failure and a bad person. That I was never going to be a proper son or brother or friend. Because I couldn't even be what I was supposed to be, let alone what I should become.

Looking back, I can't help thinking about how much of my life I spent living this way; of trying not to repeat the sins of my past. Of not repeating the actions or behaviour that led to those past failures and trauma. Of, in fact, all the effort I put in to not being myself. Because that, I realise now, was what I was trying to do. I was that round peg and trying to hammer myself into the square hole. Because everything I had learnt had taught me to think that this was how I had to be. That this was how you grew. And in so many ways, I can't help feeling angry about this. About the wasted years, about the scars I carry that were never my fault. About the way I was brought up, even though none of it was ever meant, but only ever well-meant.

#Autism
#Actuallyautistic