olena

olena , 1 day ago to ActuallyAutistic group

Do you guys also combine almost pathological conflict avoidance - and the brilliant talent to create a conflict out of nothing just trying to explain your point of view or to point out some factual error another person made while talking about your special interest?

I don’t defend myself, I don’t tell I don’t like something or that I see that I am being taken advantage of or being lied to, or that someone hurts me - I never raise a voice and tell that, or question them, or demand my rights and all - because I am terribly afraid on conflicts. Not even that I won’t be liked, or that there’s going to be some consequence or anything. Just a conflict itself. I’m scared even when there’s a conflict that doesn’t include me nearby, but even the shadow of an idea that something I may say may create a conflict makes me go silent, and just dodge and tolerate more, doesn’t matter how bad I feel.

But when just discussing something - I mean not something important, may be a birds name, a train route from 80-s, the way some thing works etc - any abstract staff that doesn’t correspond to my life in any way - especially when I clearly see the opponent is making the factual error or denying my actual experience with the topic - it does create a conflict, and people would say I am a conflicting person, I am the one who likes to just disagree and all.

Is that desire to avoid conflict at all costs - and the inability to actually spot when another person starts to see your discussion as a conflict - some #neurodivergent thing?
#autism
#AuDHD
#ADHD
@actuallyautistic

olena , 1 day ago to ActuallyAutistic group

We got free lunches at work: on the weekend, they send the menu, people choose between three options for each of two meals for each workday, and the food is delivered every day fresh from a restaurant nearby(not a fancy one, typical “homemade” food). If you need, they provide options for vegans or food restricting diets.

I am the only person in the office not doing that. I cannot explain to my coworkers why.
No, I don’t think the food is bad. No, I am not dieting, I am not looking for ‘something healthy’, I am not counting calories.

I am eating at work my fruit and yogurt every day, not being restricted to the time when their food arrives, and I am happy.

I can’t explain to them that I can’t carry such a commitment as decide on a weekend what to eat each day, and have to follow that. What if I don’t feel like that food? What if it’s not what I pictured in my head when ordering? What if I am not hungry? What if I get hungry earlier? And I just can’t do a full meal in the middle of a day and work after that. The meal should be at home, with some rest after it, or in the restaurant, with a good walk before and after, and good conversation during it. And I don’t want to eat a salad if it wasn’t done this very second right here because of frivolous microbiology thoughts. And anyway I prefer to cook myself, when I know perfectly well what it is, how it is done, and I balance the tastes and flavors to my own liking(I like to go to gourmet places somewhere, but it’s not an everyday experience, I doubt I’d be able to eat out every day anyway)

So, I’ve been asked again and again why wouldn’t I order something for myself, and every time I have to say ‘no, thanks’ and can’t tell why.

Apparently I am a picky eater.
#AuDHD
#autism
#neurodivergent
@actuallyautistic

olena , 3 days ago to ActuallyAutistic group

I don’t operate the world putting everything into defined folders and boxes of clear tree-like structure (like I do on my laptop).
I operate the world by slapping infinite amount of tags on everything (which do not exist independently like in some tag cloud, but are rather interconnected in their own ways), and then tag-filtering or pulling the chain of tags when I need.
Sure, from outside that looks like a totally random chaotic pile, but it has its own structure, just the structure is different to what is usually pictured as a structure.

I know, autists are usually pictured as the ones requiring the boxes, but is it necessarily the boxes autists crave, or other forms of structure also work?
#autistic
#autism
#AuDHD
#ADHD
#neurodivergent
@actuallyautistic

olena , 4 days ago to ActuallyAutistic group

Just realized that spending time with people I know, including - no, especially! - family, drains me out so much not because of all the activities, noise, planning and plans being neglected and all those things, but because of masking. Like, 95% of my energy goes to masking, to staying within acceptable range. Internalizing the meltdown that happened because of being overwhelmed takes more energy than actually dealing with being overwhelmed. Having plans established when I offered going without a plan, than changed, than cancelled, than uncancelled, than changed again and the day ruined is hard, but being smily and kind and attentive, and fun and creative after that is much more draining.
I know why most of us hate being observed: because if observed, we have to mask harder - so instead of doing the task itself and dedicating all of us to it, we have to use a lot of energy to constantly control the way we’re perceived to make sure the mask didn’t slip.

#AuDHD
#neurodivergent
#autistic
@actuallyautistic

olena , 4 days ago to ActuallyAutistic group

“Don’t assume, ask” - is the approach I share. However, there are many people to whom asking seems like something rude and inappropriate. And those people would assume.
The thing is, I am one of those people that usually can’t be accurately assumed: if you’d think a person that does this and this would also do that, the one who likes this and this would hate that and so on - most probably, I’d not follow that pattern. For that very reason I’ve been called ‘eclectic’, or less politely - ‘messy’, ‘illogical’, and all sorts of weird - most of my life, and for that very reason some people are kinda afraid of me: they can’t predict because their assumptions aren’t correct.
In turn, for me it’s very frustrating/confusing to see that someone is offended by me asking directly instead of assuming because all I want is to avoid any misunderstanding and clarify things.
I feel like #AuDHD is quite an eclectic thing per se(due to some #autism aspects looking from a certain point of view as opposite to those of #ADHD), so maybe that is the key to me being so, well, contradictory in eyes of other people.
I wonder, if that asking is just #autistic desire to have things clear and precise, or assuming/asking divide does not correspond to the NT/ND one
#neurodivergent
@actuallyautistic

olena , 14 days ago to ActuallyAutistic group

I don’t have nostalgia. I don’t miss places. I may remember them vividly, and love something about them, and hold it dear in my heart, but when I leave - I don’t want to come back.
Actually, I feel rather bad if for some reason I have to. Because the place has already changed. Because I have already changed. Because we’re out of sync now(if we ever were). Because I don’t belong. And seeing that hurts actually way more than just not returning.
Maybe it has something to do with the lack of object permanence. Maybe it is more about that autistic refusal to accept the reality which differs from expectations. Inside, I feel like a kid having a meltdown in the middle of the shopping mall because the toy they got was not 100% what they imagined it was going to be. No place is what you remember when you return after leaving. Maybe that’s the reason.

Is it something other #neurodivergent people also experience often? Do you feel nostalgic often or refuse to get back?

#AuDHD
#autistic
#autism
@actuallyautistic

olena , 14 days ago to ActuallyAutistic group

‘I would strongly recommend going through the ADHD testing, but I am not licensed to do the test myself, so I can’t give you the official diagnosis of it as it can only be provided after the test by a licensed specialist, and there are very few ones with this narrow license. However, if you manage to get the test done, come to me with the diagnosis, I would accept it from any licensed provider, and then I would be able to provide you the treatment and the medication: though your insurance doesn’t cover the evaluation, it covers treatment.
As for the autism testing, do it if you have extra money as anyway there’s no treatment against it, and if you struggle with any particular issue - we can work on each of them on the therapy without an official autism diagnosis’ - the second psychiatrist after actually talking to me.

For the reference: depending on the provider, the testing is around 400 euro for either(I haven’t found any combined option, btw, so if I want to do both, it’d double)

Yes, there’s general free healthcare. When I asked in my health center about the psychiatrist appointment(without even specifying the goal), I was told the waiting list currently is more than an year, so they won’t even book one for me.

And people still would go “If yOu rEalLy hAd AuDHD, yoU’D hAvE aN ofFiciAl diAgnoSis”…

#AuDHD
#autism
#ADHD
@actuallyautistic

olena , 19 days ago to ActuallyAutistic group

Speaking of joking.
When I was young, pretty often when I wanted to make a joke, I was too embarrassed to do that personally, so instead of joking directly, I’d add “as one of my friends says…”, or “as I’ve read recently…”(obviously, there were no friend and no book, it was just some snarky comment I came up with and desperately wanted to drop). I didn’t do that with serious things, it was just a way to slip in a joke - because doing it openly felt too daring for some reason.
When I got older, I used to do it less and less often, and now (almost?) don’t do that (probably?), but I still don’t quite understand why I was: what it was actually for, why did I need, what it was supposed to solve.
Is this also some #neurodivergent thing? Something related to RSD? Part of autistic masking? Or just my own weird thing?
@actuallyautistic

olena , 20 days ago to ActuallyAutistic group

Of all the avatars I’ve ever used, my favourite was made of a bit of MRI of my own brain.
Part of the satisfaction was to have long discussions with moderators saying the avatar is supposed to show the person - and arguing that the brain is actually what I am as a person, not my face.
I pretty often enjoy finding different ‘well, technically…’ loopholes, though mostly not for exploiting them, but for the sheer joy of pointing them to someone and chucking together over such a joke.
This, together with puns, together with all “imagine this and this, wouldn’t it technically be that?” type of jokes is basically my favourite genre of humor.
And my relationship with humor is kinda complicated: I love funny things, but I often don’t find pure comedies funny(while can have a good chuckle in some straight-face side jokes in some procedurals or adventures), and the main reason is I don’t find it funny when someone struggles, someone is getting hurt, someone is ridiculed or put in an awkward/cringy situation. Someone falling isn’t funny, someone failing isn’t funny, someone put in a situation when they are clearly experiencing fear, shame or disgust isn’t funny for me.
Maybe I just empathize too much: imagining myself in their place makes me want to run away, hide, stop existing, so I just can’t feel any fun there.
But give me a good chuckle with an unexpected pun, give me those “technically..” jokes, give me clever side remarks - that may be soo funny!
Basically, for me, in all the movies, books, shows:
Chuckle > laugh
Maybe it has something to so with RSD and fear to be laughed at(based on previous experiences)
Is it something common among #neurodivergent folks? I imagine it may have something to do with #autism and affective empathy?
What is your relationships with different kinds of humor?

@actuallyautistic

olena , 20 days ago to ActuallyAutistic group

Just was ‘diagnosed’ with anxiety today after talking to a psychiatrist for five minutes (I’m using quotes because it seems a bit too preliminary to me to diagnose whoever with whatever after about 5 minutes of general talk).
Came asking for #ADHD and #autism evaluation. Was totally ignored on that regard) Of course, didn’t have courage to ask again.

Was it so obvious? Was I just a walking stereotype: middle-aged woman from a war-thorn country living alone who voluntarily came to a psychiatrist(doesn’t matter what else she has, she can’t NOT be anxious)?
Or is it just a general experience of most of #AuDHD female-passing folks: to be seen as anxious, to have most of their symptoms attributed to #anxiety (not like I was asked about any symptoms, but maybe have demonstrated some?)?

@actuallyautistic

olena , 25 days ago to ActuallyAutistic group

Everytime I stand in front of the door and frantically search for the keys in my bag, all that #anxiety makes me panic, pushes me to the verge of tears - even though it is not such a big deal because I’m not in a hurry and if anything, the concierge has a spare pair.
So, naturally, my #autistic brain tries to compensate for a possible #ADHD fail - and every time I walk home, I feel almost unbeatable urge to get my keys out of my bag to my hand when I am still like 200 meters from home.
I suppose, it’s the same overcompensation mechanism that makes me come to airport at least two hours before the departure and to a train station at least an hour before, buy spares of essentials each time a bottle starts feeling not full, or always have a stocked pantry(though there may be multiple of ones and none of others as I always forget to check what I have before going to the store)

Is this exaggerated(to the point of creating problems) ‘better safe than sorry’ something #AuDHD people are more prone to? Do you guys also do that?
@actuallyautistic

olena , 1 month ago to ActuallyAutistic group

What some people don’t seem to be able to understand is that for the ones with executive disfunction number of steps matters a lot.

I just put away all my dried laundry aside of duvet cover.

Why? Because for all the other things it’s easy one-step task: grab all the knickers and shove them into the drawer, get the home clothes and put it into home clothes cube box(that cubed Ikea shelf is such a helper for people like me, I just have a cube for every thing).

But the linen shelf is at the top of the bathroom closet, and it’s almost full. So I need a stepladder to be able to put the duvet cover there(I can try to shove it there without, I kinda reach the shelf itself, but in its current state the cover is likely to fall from there, and probably with some other things, so that would upset me which I am not ready to deal with now).

But the stepladder is now occupied by my winter shoes which were drying there before I put them away for summer.
But to put them away I need to get two big boxes from under my bed, empty one by putting everything that is there into the other one, put all the shoes there, put the boxes back under the bad, ensure all the boxes there are arranged in a way that is allowing my cat to play in that labyrinth, and probably clean up after that as I suppose there’s going to be a few dust bunnies.

Gosh, I got tired by just typing all that.

Going through all those steps may bot take too much time(if I don’t get distracted by something, including the urge to sort everything perfectly), but the very thought of going through all those steps just discourages me so much that I can’t find energy to start. “It’s just one duvet cover!” - they say. “It’s a shitton of steps!” - I answer.

Well, the cover is drying in a way that obscures a view from my bed which irritates me enough to maybe develop enough anger to put it away in the weekend.

#executivedysfunction
#neurodivergent
#ADHD
#audhd
@actuallyautistic