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pathfinder , to ActuallyAutistic group
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@actuallyautistic

Much to my shock I realised that I could be autistic when I was 53, roughly 7 years ago. And it was a shock, even though I suspect a very small, well hidden and very much ignored part of me, might have suspected. No one told me about it, or suggested that it might be the case. I did not see myself in relatives, the way so many of us do. I just happened to come across an autism test online and for no particular reason, took it.

It was that, that started me on my path to realising and finally accepting the truth that I was autistic. But, looking back, I sometimes find it hard to understand how I didn't know earlier. So much of my life now, just screams autism at me. But even ignoring the horribly ableist and medieval view I had of what autism was, the main reason why I didn't was probably because I could mask, both from myself and others, so well.

It was, I realise now, a life lived in denial. A denial of how much things bothered me, how much effort I had to put into things. Even a denial of the things I knew I couldn't do. Because this is the thing about appearing to mask so well, for so long. It is, in a sense, a lie. I couldn't mask well, if at all. Not all the time. Not in all situations or circumstances. There were things I just couldn't cope with, or even begin to deal with. But the trick was, that I either knew about them, or learnt the hard way about them and then I could manage my life to avoid them. Because they were things I could live without, without affecting how I appeared to be coping. Things that didn't affect the way I lived, even if they did affect my sense of worth. Because, how broken did you have to be, not to be able to go to crowded events, like a sports match, or a concert? Or to be able to deal with the socialising of a large gathering, or a family event, without having to hide in the kitchen, or forever outside, or break down in a toilet?

It was all part of how I masked myself from myself. The internal masking, as I like to call it. If I couldn't cope, then I was broken. If I couldn't stand something, then I was too picky, or sensitive, or I simply needed to learn to ignore it. And somehow I did learn. I learnt how to cope with noise and smell and visual overwhelm. I learnt to not let things bother me. To a point at least. There was always a step too far, when I couldn't, or didn't have the energy any more to maintain it. And this did take energy, a lot of it. Something I've only realising now that I don't have the energy to spare to even try it. Or the ability to, in many respects now that I know what I was trying so desperately to hide from.

Because when the truth is known, it's far harder to deny it. It's far harder to live the life where appearing to cope, is as good as coping. Where blaming yourself, is easier than seeing others faults. Where ignoring the pain, makes the pain go away. It's hard to see the mask as a benefit and always a good thing, rather than the shield and tool it always was.


megstev ,
@megstev@mastodon.au avatar

@pathfinder @actuallyautistic I see you. I self diagnosed at 67, which was then confirmed by a psychologist.

niamhgarvey , to ActuallyAutistic group
@niamhgarvey@mastodon.ie avatar

Doctor suggested I have but I don't think I do because:
I am able to force myself to do things even if I'm not interested in it.
I do not like spontaneity.
When I have a deadline, I cannot leave it to the last minute or anxiety would cripple me.
But I do struggle to pay attention unless am hyperfocused. And I do have executive function challenges. And I have to have a project. And I crave dopamine hits.

Anyone else similar to that?
@actuallyautistic
@actuallyadhd

megstev ,
@megstev@mastodon.au avatar

@un_ouragan @niamhgarvey @Zumbador @miffyhelen @actuallyautistic @actuallyadhd I really struggled when my kids were little. No help except from my husband who was the wage earner - we’re migrants. Had a massive meltdown when my second was one, and my first was four. Spent years going to therapy trying to find out what was wrong. Eventually diagnosed with ASD when I was 67. And I feel my eldest has never forgiven me for being the flaky and unpredictable mother that I was. It was good to learn what meltdowns and burnouts were and how I could look after myself better to prevent them.

megstev ,
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@niamhgarvey @un_ouragan @Zumbador @miffyhelen @actuallyautistic @actuallyadhd Thank you. It was tough. I am enormously grateful that I now know why - and I don’t think it would really have helped to get an earlier diagnosis. Autism meant something different in my younger days. But I do wish I could’ve told my late misunderstood dad that he was also autistic.

megstev ,
@megstev@mastodon.au avatar

@niamhgarvey @un_ouragan @Zumbador @miffyhelen @actuallyautistic @actuallyadhd It brings me to tears to find people at last who understand how hard it is to parent without help as an autistic person. I feel understood in a way I’ve rarely felt. Thank you 🙏

megstev ,
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@niamhgarvey @un_ouragan @Zumbador @miffyhelen @actuallyautistic @actuallyadhd My kids are late 30s and early 40s, so a lot of water has gone under the bridge. My eldest even “diagnosed” me with BPD before I worked out I was autistic. I’m still trying to stabilize my relationship with them. They were so hurt by my flakiness and though they now understand why, the divide is still there. And I mask heavily in front of them as I don’t want to upset them more.

megstev ,
@megstev@mastodon.au avatar

@Zumbador @niamhgarvey @un_ouragan @miffyhelen @actuallyautistic @actuallyadhd Thank you 🙏 It is. I love them to bits and hope things will work out and become easier.

megstev ,
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@Zumbador @niamhgarvey @un_ouragan @miffyhelen @actuallyautistic @actuallyadhd I see you’re from Cape Town - where I grew up. I left in the 80s because of apartheid. Maar ek kan nog Afrikaans praat.

megstev ,
@megstev@mastodon.au avatar

@Zumbador @actuallyautistic @actuallyadhd En dit was glad nie ‘n ding om autistic te wees by ‘n Afrikaanse skool in Kaapstad te wees in die sestigerjare nie. Ek was baie geterg.

megstev ,
@megstev@mastodon.au avatar

@Zumbador @actuallyautistic @actuallyadhd My Pa se ouers het in Paarl gewoon en hulle was groot ondersteuners van apartheid en van die NGK. My Ma was Engels. My ouers was nie ondersteuners van die NP of die NGK, maar het ons na Afrikaanse skole gestuur om vir Ouma en Oupa te paai. Ons het almal na UCT gegaan gedurende die studenteproteste in die sewentigs. Ouma was nie daaroor baie bly nie. My broer het toe na Engeland getrek, en ek na Australie toe. My suster het in Kaapstad gebly. Maar die tagtigerjare het ook probleme gehad - liewe PW wat met Ouma se niggie getrou het!

megstev ,
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