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arisummerland

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My biggest question: If we aren’t organized into human society to help everyone, what are we even doing?

#ActuallyAutistic #queer #Kansan from # LFK, Certified Listener Poet, meditation teacher, bodyworker, #typewriter aficionado, #HondaElement fan, Jewish Buddhist Dudeist, dog, cat, and chicken tender.

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Ilovechai , to ActuallyAutistic group
@Ilovechai@sciences.social avatar

I don't have the spoons to explain why I feel my neurodivergence is making this worse, but I need feedback or insight from other ND people on a unique experience. This will be a long thread (added in replies) but I'm hopeful there will be a few kind readers who either relate or have something supportive to share.
Here goes:
1/
@actuallyautistic @actuallyaudhd


arisummerland ,
@arisummerland@beige.party avatar

@Ilovechai @actuallyautistic @actuallyaudhd

I don't go on discord much, but yes. There is this group:

ALT
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  • lifewithtrees , to ActuallyAutistic group
    @lifewithtrees@mstdn.social avatar

    “What do you want to do 5 years from now?”

    🤔

    😬

    🤯

    I am having a difficult time visioning 5 years from now, what I want to do and then how to get there.

    Some of this is due to the chaos of the last few years, but I also think it could be a challenge due to

    Also I am 42 so midlife stuff?

    That all said, how do you vision 5 years from now?

    @actuallyadhd @actuallyautistic

    arisummerland ,
    @arisummerland@beige.party avatar

    @lifewithtrees @actuallyadhd @actuallyautistic I have always found this a nonsensical question and have never been able to answer it. I am I incapable of making a five-year plan. A single year never even goes or ends the way I hope it will. Five is impossible!

    Zumbador , to ActuallyAutistic group
    @Zumbador@mefi.social avatar

    @actuallyautistic

    I have half formed thoughts about autism and externality. Not sure if "externality" is the right word?

    I seem to be much more entangled with objects and my environment than most people, and I think that's a autistic (and ADHD?) thing.

    Having to use notes and lists to remember things and organise my thinking, as if my memory resides as much on paper and digitally, as it does in my brain.

    Having strong empathy for non-living things, as if harming them is harming myself.

    My relationship with my home: I don't really feel safe and relaxed anywhere else, and I strongly dislike other people (except for my husband) being in my space. As if my space is an extension of myself.

    All of these things feel like different manifestations of the boundaries between myself and everything else being blurred.

    arisummerland ,
    @arisummerland@beige.party avatar

    @Zumbador @actuallyautistic Absolutely I vibe with non-living things (as well as living). Have done so my entire life. Very attached to certain objects, often way more than people! Sometime it even hurts when those objects get damaged. It's weird, but it's me.

    arisummerland ,
    @arisummerland@beige.party avatar

    @Starbrother @Zumbador @actuallyautistic I also do my best to take really good care of my stuff, so I've got most of it for years. Attachments do form in long periods of time like that!

    arisummerland ,
    @arisummerland@beige.party avatar

    @punishmenthurts @Starbrother @Zumbador @actuallyautistic I enjoy giving old stuff a new life, when I am able!

    Uair , to ActuallyAutistic group
    @Uair@autistics.life avatar

    @actuallyautistic

    How are you with animals?

    I tend to throw off the wrong vibe for people, but get along with even the iffy animals. Dogs that don't like most people warm to me.

    Just wondering how much of that is autism and how much me. My dad hates animals.

    arisummerland ,
    @arisummerland@beige.party avatar

    @Uair @actuallyautistic 100% better with animals than people.

    pathfinder , to ActuallyAutistic group
    @pathfinder@beige.party avatar

    @actuallyautistic

    Much to my shock I realised that I could be autistic when I was 53, roughly 7 years ago. And it was a shock, even though I suspect a very small, well hidden and very much ignored part of me, might have suspected. No one told me about it, or suggested that it might be the case. I did not see myself in relatives, the way so many of us do. I just happened to come across an autism test online and for no particular reason, took it.

    It was that, that started me on my path to realising and finally accepting the truth that I was autistic. But, looking back, I sometimes find it hard to understand how I didn't know earlier. So much of my life now, just screams autism at me. But even ignoring the horribly ableist and medieval view I had of what autism was, the main reason why I didn't was probably because I could mask, both from myself and others, so well.

    It was, I realise now, a life lived in denial. A denial of how much things bothered me, how much effort I had to put into things. Even a denial of the things I knew I couldn't do. Because this is the thing about appearing to mask so well, for so long. It is, in a sense, a lie. I couldn't mask well, if at all. Not all the time. Not in all situations or circumstances. There were things I just couldn't cope with, or even begin to deal with. But the trick was, that I either knew about them, or learnt the hard way about them and then I could manage my life to avoid them. Because they were things I could live without, without affecting how I appeared to be coping. Things that didn't affect the way I lived, even if they did affect my sense of worth. Because, how broken did you have to be, not to be able to go to crowded events, like a sports match, or a concert? Or to be able to deal with the socialising of a large gathering, or a family event, without having to hide in the kitchen, or forever outside, or break down in a toilet?

    It was all part of how I masked myself from myself. The internal masking, as I like to call it. If I couldn't cope, then I was broken. If I couldn't stand something, then I was too picky, or sensitive, or I simply needed to learn to ignore it. And somehow I did learn. I learnt how to cope with noise and smell and visual overwhelm. I learnt to not let things bother me. To a point at least. There was always a step too far, when I couldn't, or didn't have the energy any more to maintain it. And this did take energy, a lot of it. Something I've only realising now that I don't have the energy to spare to even try it. Or the ability to, in many respects now that I know what I was trying so desperately to hide from.

    Because when the truth is known, it's far harder to deny it. It's far harder to live the life where appearing to cope, is as good as coping. Where blaming yourself, is easier than seeing others faults. Where ignoring the pain, makes the pain go away. It's hard to see the mask as a benefit and always a good thing, rather than the shield and tool it always was.


    arisummerland ,
    @arisummerland@beige.party avatar

    @pathfinder @actuallyautistic I appreciate you so much, Kevin. You always say these things so well and I resonate with this so much.

    I started looking at "just what the hell was wrong with me?!" in 2016 after having to leave what should've been a dream job because it combined my college degree and my professional training. But the social aspects of the small office were intolerable, and I melted down so many times at work that I can't even tell you.

    I had no idea at the time that I was autistic. In the years since then, because of online community and a few friends in real life who are also autistic, I've learned a lot about myself and been able to start forgiving myself for not being able to be "normal".

    I entered a very deep period of burnout three years ago, after losing my partner and my dad in the same year, and now I am currently working to get out of that.

    I sometimes feel hopeful and proud, both, about my neurology and understanding how to work with it better in the world. The isolation of the pandemic was hard, but it allowed me to drop all of the social constructs that were really not serving me.

    I appreciate all of you so much! Thank you for being here. But especially you, Kevin. Please keep writing to us. You reach a lot of people in a really profound way.

    pathfinder , to ActuallyAutistic group
    @pathfinder@beige.party avatar

    @actuallyautistic

    Autistic brains be stupid. Well, obviously not stupid, they just seem to work, or not work, in mysterious ways.

    The main one that has always got me, about mine, is that I have no memory for sound, absolutely none. I can't remember a song, or a sound. I can't remember what my parents sounded like and none of my memories carry, for want of a better word, a soundtrack. I can remember what I was thinking and what others were saying, but not hearing them say it, nor any other sound. I also don't dream in sound, at least as far as I know. All my dreams are silent.

    And yet, and it's a big yet. I have an excellent memory for voices and sounds. Like many autistics I have near perfect pitch, at least when I'm hearing others sing, or music playing. Just don't ask me to reproduce it, because I can't. If I meet someone I haven't met for a while, then I will almost certainly not recognise their face, or remember their name, but there is a very good chance that I will recognise them from their voice. I am also very good at detecting accents. Even the slightest hint of one in, say, an actor pretending to be an american, will get me searching Wikipedian to see if I am right about their actual nationality.

    So, if I can tell the sound of a Honda CBR engine two blocks away, or a voice, or an accent buried deep, I must have the memories to compare against. And yet... nope.

    So, as I said, autistic brains be stupid.


    arisummerland ,
    @arisummerland@beige.party avatar

    @pathfinder @actuallyautistic Oh, this is fascinating! There has to be a name for it.

    I wish I had a little bit less pervasive sound memory. It stands me in good stead with other humans, though, bc I am bad with faces and names, so once someone talks, I know if I know them.

    Sounds, voices, accents, they all come with strong physical sensation and thus, strong memory. Sounds get stuck in my head, sometimes on repeat. I have to change my alarm tone frequently because even if I choose a seemingly pleasant one, it will end up stuck on a loop in my head. Sometimes I can sit down and reproduce it on the piano. But I don't think I have perfect pitch, despite having been a musician my entire life.

    Our brains are so fascinating, aren't they?

    arisummerland ,
    @arisummerland@beige.party avatar

    @pathfinder @actuallyautistic Yes, frustrating as well. I'm aphantasic, but I still dream. I haven't considered whether I can hear things in my dreams or not, though.

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