PixysJourney

Tim_McTuffty , 26 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 219 , Monday 03/06/2024

Another disturbed night, slightly better than last night because I had learnt some lessons on ewhat my foot would & would not tolerate.

Went to see the GP this morning, I have, in fact, got gout . So on a 4 day course of Colchicine … the GP was very specific about the 4 days - apparently 5 days = my entire digestive system liquifying & a decent stay in the local hospital !

The new meds are working a storm in association with the pain killers , this evening I am walking (well shuffling) sans crutches ! It hurts like hell, but importantly it is bearable !
I hope that this means that I will get some decent sleep tonight !

Also made an appointment to see yon GP about my ADHD assessment in a week or so , so the journey continues !

Final Thoughts.

I am so relieved to be coming out of the other side of this gout flare up , is has been one of the most painful experiences of my life !
Hopefully future episodes will be avoided via ongoing medication.

I really hope that seeing yon GP later this month will be a positive move in my ASD journey !

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 26 days ago

@Tim_McTuffty
Booh for the gout but yay for the quick appointment and helpful meds! And be careful with the meds!!!
Yay for the adhd appointment as well. 😊
Hopefully the meds help you to have a good night sweets! 🤗
Take it easy and try to keep the weight off the foot when you can, elevate it so it can relax. 😊
But I guess DuckDuckGo and the GP may have mentioned that as well 😉
@actuallyautistic

Tim_McTuffty , 27 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 217 , Sunday 02/06/2024

So last night was fairly awful. My foot felt like someone was trying to rip it off while hitting it with a hammer !
I think I can safely say that it was the 2nd most painful experience of my life - the first was tearing my Achilles !

Mrs S. went adventuring in the loft to find my crutches (guess when the last time I used them was ! ) because my left foot is not weight bearing at all !

I finally got some relief after sailing dangerously close to an OD level of pain killers , & eventually fell asleep.

Been depending heavily on Mrs S. for help n support today , but still having to finish jobs she starts / ½ does. I am sitting heavily on my trigger responses , she is trying to help after all .

So the meds might be holding back the very worst of the pain, & spacing me out slightly , but it is also affecting my appetite. I really don’t feel like eating at the moment.

My toe is now really badly swollen , GP will be getting a call in the morning & hopefully I’ll get an appointment!

Final Thoughts.

I’m exhausted now, lack of sleep & the fact that limping around the house is actually quite tiring !
Hopefully have a better night tonight !

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 27 days ago

@Tim_McTuffty
🫂 Hope you get a quick appointment 🌸 it sounds like you could use it!!!
Glad Mrs Skwerl got the crutches for you, and that's she's trying to help best as she can. The pain may enhance some triggers as well, so do try to be kind to her as she tries... She may not do it all like you'd do it... But hey, she's not used to doing it! 🤗
Fingers crossed 🤞🏻 the GP will see you first thing!!! And that (s)he can help you with some form of treatment/meds/big saw 😉

Hope you're having a good night sweets 😘 I'll try to catch up with you tomorrow!!! Well, this morning when you read this 😉

@actuallyautistic

PixysJourney , 27 days ago

@Tim_McTuffty
Hmmmmm some people may be euh... Challenged in some ways? 🤔
Ah well, breathe and keep doing that... 🤗
You're very welcome 🌸

@actuallyautistic

Tim_McTuffty , 28 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 217 , Saturday 01/06/2024

Woke up in agony at around 1:30am it seems that I may have gout in my left big toe (apparently one can inherit it - thanks Dad! ) & it hurts like a barsteward !
Hit the co-codamol , pain med of last resort (I need a high dose so I only use it when totally necessary ) & once that kicked in I was able to get back to sleep

The weather picked up thru the day & this evening is lovely & sunny.

Our neighbours - 3 doors down are having a party - an all day party - with the volume cranked to 11 , it’s becoming annoying because their taste in music is questionable to say the least!

I really hope that they pack it in before it gets late , it will be hard enuf to sleep without some tit playing Dennis waterman at 200Db ! 🙄🤦‍♂️

Starting a Blade fest tonight , been a while , still a good ‘turn your brain off’ movie , lots of tommy sauce & toasted vampires 😆

I’m high off the back of the pain killers at the moment , one of the reasons that they are a drug of last resort , it is making the whole experience slightly surreal!

Final Thoughts.

1st day of summer - please can we have some warm weather !

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 28 days ago

@Tim_McTuffty
Hopefully you survived the day dear! Glad the meds help, even though they make you zone out some (which could have been helpful I see 😉).
Call the GP on Monday!!! You like the GP as much as I do, you enjoy calling as much as I do, but still... Call! If you can't see one doc for both issues, then schedule two separate appointments. Get one for that foot first, the adhd is less pressing than the pain!!!
If I can call the vet for Arwen and make a quick appointment, you can do it for your foot! 😉 (hope this helped, I think some other peeps may have given the same advice so maybe.....).
Have a good night sweets 😘
I'll catch you when you're up again 🤗 🌸

@actuallyautistic

Tim_McTuffty , 29 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 216 , Friday 31/05/2024

Up just after 6am today.

A quiet day, the only thing of real note is that what ever is wrong with my left big toe is getting worse.
There are no signs of injury but it hurts to touch & is making it hard to get comfy at night.
Today I caught it as I tripped over one of the Varmints & it hurt like a bugger !
I am slowly falling apart - if anyone wants me for medical science now’s the time to get your bid on ! 😆

The weather has slowly improved today , this evening is lovely & sunny, if a little chilly !

Final Thoughts.

Even being retired, Friday is a special day. I realised it’s June tomorrow - nearly 6 months gone already !

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 29 days ago

@Tim_McTuffty
Good day sweets,
I hope you get to a GP and have that foot checked out before it falls off 😉 better be safe than sorry!
I've had a busy day where I helped mum. And worried over my gall, she can't seem to catch a break... 😔
Hope you're having a good night!
🤗 Hugs from me and boops from my royal sweetness 🐾 💜

@actuallyautistic

Tim_McTuffty , 30 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 215 , Thursday 30/05/2024

Up around 6:30am today.

Breakfast & chores followed.

I was really tired today, & kept falling asleep at odd moments.

We went wild this evening had had pulled pork in a BBQ sauce with chips & sweetcorn for tea, livin the dream here in deepest darkest Yorkshire !

Final Thoughts.

The world is such a tough place at the moment, my heart goes out to those sharing my TL who are struggling thru far worse than I have to put up with!

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 30 days ago

@Tim_McTuffty
Haha be careful with all the foods... Or I'll have to make AI Skwerl images where the body Armour doesn't fit the Skwerl anymore as he's too round 😂 Hihi.... 😉

Hope you're having a good night sweets. Hey, it's almost Friyay there 😉

Hugs from Arwen and me! 🐾 💜

@actuallyautistic

Tim_McTuffty , 1 month ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 214 , Wednesday 29/05/2024

Up a little later today as Mrs S. was working from home.

Still fighting the agoraphobia , sometimes I wish I didn’t live so very far from my family, they would come round & drag me out.
But they live nearly 100 miles away & have their own lives.

Spent the morning totally indecisive about what to do.

Made some egg sandwiches for me n Mrs S. for lunch , then , as per had to clear up & wash the dishes too.

Ended up reading for a couple of hours then hit Fo4 after lunch.

Went wild & forsook the soup option for tea, in favour of spaghetti hoops with a couple of slices of toast - I really need to break out of the house so I can get some real food !

Final Thoughts.

Stupid brain going nuts about going outside !

I need to get myself out of this current episode , it’s not as bad as some I’ve had , but it is doing my tree in!

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 1 month ago

@Tim_McTuffty
Ello sweets 😘
Sorry you're struggling with not being able to get out (and get decent stuffs). I'm even further away so I can't do anything to help, except be here to chat if you'd like...
Hopefully you had a good evening and you're having a good night!
🤗 😘

@actuallyautistic

PixysJourney , 1 month ago

@Tim_McTuffty
You're very welcome 🌸 🤗 🫶🏻
I also enjoy chats with you, MLS 🫶🏻
@actuallyautistic

Tim_McTuffty , 1 month ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 207 , Wednesday 22/05/2024

Up early as Mrs S. was in the office today.

Felt a lot better today , eating almost normally , just feeling somewhat knackered still.

There’s a calm, peacefulness when I’m on my own, especially at the moment.

After yesterday’s epic ‘War n Peace’ entry there is not much to add today.

Final Thoughts.

I’m hoping that full digestive services will be restored!

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 1 month ago

@Tim_McTuffty
🤗 Glad you're feeling a bit better. And yeah, the moments we're on our own can be quite good as we can be ourselves all the way then... 😊
Have a good night sweets 😘

@actuallyautistic

Tim_McTuffty , 1 month ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 205 , Tuesday 21/05/2024

TL:DR Late up today , so was more or less ignored. Clues to whether I’m AuDHD & if I’m going thru a burnout period came to light from fellow ND Peeps.

I had a somewhat enforced lay in this morning, in that I was so exhausted that I simply slept thru all the noise that would usually wake me up.
I finally got up around 07:30. Life obviously went on without me, even though Mrs S. was working from home.

Me: I’m a total introvert & wish to be alone.
Also Me when wife zones me out because I was late to get up: I’m so lonely !!!
Is the mind of an ND bananas or what ! (Possibly some for of nut in my case 🤦‍♂️ )

I risked a ‘proper’ breakfast this morning - I seem to have survived it 😊

I would normally have cleaned the bathroom today, but because I’m not feeling so good that didn’t happen. I know from past experience it won’t get done until I feel well enough, be that days or even weeks 🙄🤦‍♂️

I wrote a little while back , when I got the results of my assessment thru , that the Consultant Psychiatrist had suggested that I be assessed for ADHD too. That is currently on hold.
But , & here’s the thing I read a toot ( linked below) from @ashleyspencer that totally spoke to me & I recognised EVERYTHING she was talking about !
Well call me a Squirrel & bounce a walnut off me ‘ed !
I number of other folk on here have suggested that I had ADHD symptoms , but I could never put the whole package together in my own head to the point that I ‘felt’ it!
Maybe I need to pull the whole ‘getting ADHD assessment’ off the back burner ?

I also realised ,based on a toot from @pathfinder (again see the link below) that I may well be experiencing a period of autistic burnout - it seems to be so similar , in key ways to where I am at the moment. No wonder I’m struggling!

Got back into the post-apocalyptic world of Fo4 this afternoon, I had forgotten how enjoyable this game is.

Final Thoughts.

I am struck once again how much I am coming to depend on the @actuallyautistic community to help me progress on my ASD journey and understand more about me!

Special thanks to Ashley & Kevin for pointing the way today. 🙏

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

https://autistics.life/@ashleyspencer/112474885392479715

https://beige.party/@pathfinder/112476066417549514

PixysJourney , 1 month ago

@Tim_McTuffty
You don't need to read them, they just helped me so that's why I mentioned them. 😊 No worries!

Some meds can help, but the kind of help is different for everyone and some people struggle more with the side effects than with the actual adhd bits. So there is no "guarantee" you'll "be better" with something like adhd meds... It could help, but ask yourself what you need "help" with first... If that makes sense 🤔
I was very hesitant with the meds for many years due to earlier side effects. I notice some difference with the meds now, but I also still struggle with my adhd bits from day to day...

You're very welcome 🌸 we're all different but I'm glad to share my experience and views, if that could help in any way... 🤗

@ashleyspencer @pathfinder @actuallyautistic

PixysJourney , 1 month ago to ActuallyAutistic group

Question to fellow #NeuroSpicy #AuDHD folks... :confusedparrot:

For what sort of toots could I use hashtags like #ActuallyAutistic or the previous two I just used?

I Toot quite a bit about me and my quirky way life. But I never really know if I "should" add any ND hashtags as the "silly" things I Toot about are quite normal to me. If that makes sense 🤔...

I'm proud enough, these days, of who I am. But I wonder if and when it would be good to add some of these tags... Maybe it could help connect with other peeps like me 😇.

Fankoos 🫶🏻 for your help! 🌸

@actuallyautistic

:boosts_ok_gay:

PixysJourney OP , 1 month ago

@janisf
Fankoos :neurodiversity:

@Zumbador @pathfinder @actuallyautistic

PixysJourney OP , 1 month ago

@MaJ1
Fankoos 🫶🏻 I'll do my best... 😊
I'll try to use the force... 😇
But I've never been too good at that 😉

@actuallyautistic @pathfinder

PixysJourney OP , 1 month ago

@AnAutieAtUni
Awww 🫶🏻 Fankoos!
This means a lot to me and is very helpful. 😊
I wish I didn't always feel so insecure, like I'm intruding something if I'd use the hashtags... 😊 If that makes sense... 🤔
I'll try to use the tags if I wish to connect to fellow auties then 😉 let's see how that will work out.
Thanks again! 🌸

@actuallyautistic

PixysJourney OP , 1 month ago

@Tooden
That's me for sure! 😁
And thank you! 🌸
I'll do my best and try to use the tags when I'd like to reach fellow auties 😉
@pathfinder @actuallyautistic

PixysJourney OP , 1 month ago

@jaymy
Thank you 🌸
That's indeed a good way of looking at it.
Use it as an invite for conversation. 😊

@Tooden @pathfinder @actuallyautistic