PixysJourney

Tim_McTuffty , 16 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 229 , Thursday 13/06/2024

A better nights sleep last nigh, although I did wake up early, had a nice chat with CDP 🧚‍♀️.

Mrs S. was in the office today & I really wasn’t feeling it this morning ,so after breakfast I went back to bed for a couple of hours.

My brain drove me out of bed just after 9am, unless I’m really quite poorly I cannot stay in bed for too long.

So I was reflecting on the meeting with the Social Prescriber yesterday & subsequent conversations with friends on here.
I wonder if I NEED to be more social than I am now. I wonder if the benefits outweigh the stress / anxiety etc. of being in a group of people.

Also the fact that any decent support is a decent distance away. (thanks UK Gov - so much for the promised improvement in MH services NOT !)

I am social to an extent, I regularly chat , laugh ,cry etc with so many lovely folk on here. Yes it is a relationship in a digital environment, but does that make it any less valid an experience?
The Fediverse is unlike any other Social Platform, it is possible to develop real friendships here & the lack of an algorithm makes for a more interactive experience!

Honestly I don’t know, when actually confronted with the help available, if it is worth pursuing.

On a more positive note I had a great banter session with several of the Peeps on here this afternoon / evening , thanks to all who participated, I enjoyed it enormously! 😊

Final Thoughts.

I never expect that I was fighting for so little, it is quite the anti-climax.
I am glad I got my diagnosis, that has helped me understand myself in ways I did not expect, & almost every day I learn something new.
Apart from anything else I found a whole group of Peeps who relate to & share experiences & challenges unique to ND folk!

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 16 days ago

@Tim_McTuffty
🤗 I don't think anyone "needs" to be more social! And heck, I feel you're chatting more on here with more folks than I do... So by those standards, you're more social than me 😉 and not doing that bad!
Yeah it can be quite a challenge to get decent (mental) health support, but I guess that's in many countries, not "just" yours. 😔
Just research the MH bits you're interested in. Read about the AuDHD, and things you recognize, you can explore some more. It's a broad spectrum, we're all different, and what works for me could work for you, but it also could be all the wrong things... I guess that's why they called it a spectrum, as we overlap at points but we also stand out in others in our own way (I hope I'm not offending anyone with this, just how I experience it).
Be you! Chat with friends! Lurk when you have to... Have private chats when it's too hard to have them "out in the open". Shout from rooftops or lovely Yorkshire hills if they're easier to get to.... Do as toy seem fit!
Just remember to be kind, to others and yourself (I know, the "yourself" bit I should do more myself... 😇).
💜 🍀 🤗
Take good care sweets... Just be you as you are, make sure you're healthy enough, fit enough, as a healthy body helps the mind as well. And with more spoons at hand, it's a bit easier to "people".
Just my opinion, I know... But you know I like to share if it could help... 🫶🏻

@actuallyautistic

Tim_McTuffty , 17 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 228 , Wednesday 12/06/2024

Had a somewhat disturbed night, I experimented with having a full glass of water with my bedtime tablets to help hydrate me , what actually happened was rather than sleeping thru I was woken by the old call of nature around 3am & utterly failed to fall back into a deep sleep, tossing & turning for the rest of the night.
We won’t be making that mistake again unless there is conclusive proof it’s required (i.e. another gout flare up that can’t be traced to anything else!)

Finally got up around 6am , breakfast t etc ensued.

My feet are both sore , not cripplingly so, just enough to make walking unpleasant.

Spent a chunk of time on here today, honest I’m not addicted to Social Media 😆

Went to see a Social Prescriber this afternoon.
There are no services in local area that will be able to help me 🙄🤦‍♂️
The best she could off was a social cafe , with crafts & board games & coffee !
Is it me or does this smack of old peoples home ?
I have not said no , but we are going to review the situation in a month.

By chance Mrs S. in her official role received news of an Autism Hub that has opened this year about a hours drive away. So this maybe an avenue of opportunity.

Back on here again this afternoon / evening , currently expecting a spirited discussion on the state of UK politics on my other a/c.

Final Thoughts.

2 steps staggered forward , 1 step slipped back. Hey ho, it’s still progress!

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 17 days ago

@Tim_McTuffty @actuallyautistic
Glad the day went rather ok, even though the night was a bit disturbed... 😔
Hopefully you can find something that works for you. Maybe there's something to do online? Seeing your dislike for SM 😉 Hihi... You never know?
🤗 😘

Tim_McTuffty , 18 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 227 , Tuesday 11/06/2024

Up around 5:30, breakfast & chores ensued.

Had to play taxi for Mrs S. so that I could have the car to go to the GPs appointment, I would normally walk, but given the gout flare up last week I chickened out!

This morning I went to see the Doctor who sorted my ASD assessment out for me, that man is a Saint!
So different to his colleague who was - ‘Nope cannot do anything for anyone at any time , certainly not if it costs money! ‘

Today was the first time in a very long time that I have come out of Drs appointment smiling!
We are on with sorting out the ADHD assessment, there are a couple of forms I have to fill out & a couple of forms he has to fill out then it’s a case of sending them off & waiting.

I am seeing a Social Prescriber tomorrow afternoon (I’m telling you Dr S (I know !! But hey that’s his initial 😆 ) is a freakin magician when he puts his mind to it! ) to set up a care plan .. dunno owt about that but I’m sure that I will know a lot more tomorrow !

Dr S. is also referring me to the Primary MH Practitioner - Beth - who I saw before the whole ASD journey started & indeed was the one that set my feet upon this path. I misjudged her last time when I thought she had just bundled me off to 3rd parties. I will approach our next appointment with more knowledge & I hope that she doesn’t hold a grudge.

Dr S. has also forwarded my diagnosis letter to the Community MH team , he’s not sure if this will help but at this point he is reaching out for me to all those who might be able to help!

And out of the blue my journey moves into top gear again!

14:00 - forms for ADHD referral are done, just need to drop them off.

Played NMS this afternoon, ticked off a few achievements then had to go & pick up Mrs S.

I dropped off the forms for the ADHD referral en-route - I’d like to say I jogged from the car to the receptionists desk & back, but the truth was much, much more ungainly!

Made a ham salad for tea with some new potatoes , it was a bit of a challenge because herself does not believe in buying anything more than she absolutely has to to feed herself. Hey ho, for all that it wasn’t too bad.

Finished the evening off with a bit of TV & catching up on here.

Final Thoughts.

A dear friend lost a close family member today, I won’t tag them , but they & those that share TLs with us both know who I mean. Lots of love my friend , know you are in my thoughts. 🫂 🫶

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

EDIT: fixed a typo.

PixysJourney , 18 days ago

@Tim_McTuffty
Owwww that sounds like quite an eventful day for you!! Yay for Dr S (I giggled, you should have a Dr Skwerl 😂) and his hard work for you!! I hope you come out if this all with a better idea about what makes you tick.
It won't change who you are, but as I stated last year during some talks we had, I am sure it can help you understand yourself better. And with that, understand your needs and (coping) mechanisms better. It won't make it a walk in the park, but while you're on the journey, there is more time to stand still at times and enjoy the views around you, instead of rushing through... ITMAS 🤔 at least, that's what having the knowledge did for me all those years ago. And I'm still discovering things now, as I go on my journey...

Yay for some relaxed gaming!! I hope to have it all sorted when the next expedition lands so I can join again! 🤗 If you'd like me to 😇 Hihi...

Have a good night sweets 😘 sweet dreams! 😴

@actuallyautistic

PixysJourney , 18 days ago

@Tim_McTuffty @actuallyautistic just don't tell him that Mastodon will know him now as Doctor Squirrel 😂

Yeah understanding one self can be quite helpful... But, as said, it's gonna take time and effort and still it won't be easy all the time... Sorry... But it surely does help, which makes it all worth it! 😁

I sure hope so too!! Even though I suck at playing at a higher level, having my guardian Skwerly dude did help loads. 😉

PixysJourney , 18 days ago

@Tim_McTuffty @actuallyautistic it is definitely worth knowing, it's definitely worth the effort and energy! 😁

And fankoos 💜

PixysJourney , 17 days ago

@Tim_McTuffty @actuallyautistic 🤗 😘

Tim_McTuffty , 19 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 226 , Monday 10/06/2024

Up at 5:30 because my brain hates me !
Read for a while then did the whole breakfast / chores thing with a bit of SM thrown in for good measure.

I need to get focused on building motivation again, I’m slowly stagnating here & I’m not happy with myself for being this way.

A little help from certain other quarters woudn’t go amiss but that is unlikely !

Hey ho , started th energy ‘Adrift’ NMS expedition this afternoon, it was nice to have a change of pace & scenery - post apocalypse Boston is all very well but it lacks things like greenery (unless you count the Super Mutants & the glowing wildlife ! )

I’m still in the Euclid Galaxy so I have a funny feel that my first hyperspace jump may not go smoothly …

Final Thoughts.

Not a bad day, just want to build some motivation & get doing stuff.

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 19 days ago

@Tim_McTuffty
Owww yay for some SM, you kinky you 😜 haha sorry, had to be said... 😇
Yay for some gaming too! Hopefully, with the new expedition, I can join in again... 😊
Have a good night sweets 😘

@actuallyautistic

Tim_McTuffty , 20 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 225 , Sunday 09/06/2024

Had a nice long lay in today, up at around 8am.

My stomach survived trial by pizza so a normal breakfast was enjoyed.

Quiet day , mostly catching up on here.

Binge watched ‘Red Eye’ (the recent ITV series) exciting stuff !

So this is why I rarely step in to discussions on SM.
My NT nature makes me blunt, it also sometimes makes the reality of a situation very clear to me.
This is the case with climate change.
Don’t get me wrong , I am fully aware of the problem, its causes, in my own way I do my little bit to fight the good fight.
I made a comment today, to the effect that I did not believe that efforts to tame the oil industry would succeed, I was politely, but firmly told to shut up & bugger off.
Fine, I will know better next time, that this is a polarised area of discussion & those that point out realities are not tolerated by either side. I shall hold my peace & watch what happens.
I could turn this diary into a socio/political platform to air my views but I’m not going to, it is not for that. However when folks are intolerant I feel that that deserves a mention.

Final Thoughts.

Humaning is hard, that’s why am Squirrel!

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 20 days ago

@Tim_McTuffty
Yay for the good food again!!
And yeah, I always try to stay clear of discussions. While I may have an opinion, I'm like "let's keep it my private opinion", just for the reasons you mentioned... It's a shame that there's only one way or the highway...
Sorry you had to deal with that. 🤗
Hopefully you're having a good night!
Maybe I'll catch you when you're up again! 😉
@actuallyautistic

PixysJourney , 20 days ago

@Tim_McTuffty
You're very welcome 🌸 🤗
@actuallyautistic

Tim_McTuffty , 21 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 224 , Saturday 08/06/2024

A disturbed night full of nightmares & a dodgy stomach.

Up around 7am , now I can walk more or less normally I’m back on breakfast duty.

A quiet day again, reading & catching up on some more Supernatural.

Risked Pizza for tea as my stomach was feeling much better - time will tell how wise a decision that was.

Final Thoughts.

Reading up on a gout friendly diet - seems there are a number of changes that I need to make to avoid future flare ups.

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 21 days ago

@Tim_McTuffty
Owwww so glad things are improving for you!!!
Hopefully you can make some adjustments to improve things even more 🤗
Have a good night sweets 😘

@actuallyautistic

PixysJourney , 21 days ago

@Tim_McTuffty
Fankoos 🫶🏻 sweets 🤗
@actuallyautistic

PixysJourney , 21 days ago to ActuallyAutistic group Dutch

:neuro: Saying ello to all awesome #NeuroSpicy 🌶 / #AuDHD / #ActuallyAutistic peeps! :ablobcatrainbow:

I've been Tooting a lot about my current struggles relating to: moving/changing life/changing routine/being social on social media. Maybe you've noticed... 😉

I'm looking for peeps to follow! Peeps to chat with. Maybe you've been in "my" situation, maybe you'll be in "my" situation (soon), or maybe you just wanna try out your social skills (like I do).

Please drop me a Toot!

:blobCat_angel:

This time, this Toot, I will be brave and tag the Actually Autistics group for a boost :boosts_ok_gay:

Be warned, I either Toot my fingers off, or I'll lurk from a safe hiding spot...

Have a fabulous day 🌸

🧚🏼‍♀️ 🍀 💜 🐾

#PixysJourney

@actuallyautistic

PixysJourney OP , 21 days ago

@MaJ1
Awwww 🥰 fankoos 💜
@actuallyautistic

Tim_McTuffty , 22 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 223 , Friday 07/06/2024

Up around 6am again , my foot was much better but without the codeine to balance the side effects of the Colchicine my digestive system went on the rampage!

Lots of exercise up & down the stairs today - it wasn’t pretty.

Come tea time & I was able to keep a glass of water inside me, so soup & a bread roll has been consumed - results being awaited as we speak (7:35pm)

Hopefully all will be well & I can have a naughty pizza for tea tomorrow !

Final Thoughts.

I am so glad my foot is so much better, that was a very unpleasant experience !

Special thanks to all who have supported me with love & laughs ! 🤗🥰

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 22 days ago

@Tim_McTuffty
Yay for the foot doing better! Hopefully the meds can ween off soon too. 😊 I know how hard it is to be dependent on meds and it's not a good thing.... So hopefully you'll heal up soon again!
Less meds could also help with your tummy getting back to normal. 😊
Have a good night sweets 😘 🤗

@actuallyautistic

PixysJourney , 22 days ago

@Tim_McTuffty
Owww slowly and hopefully steady then as well.
That's a bummer... 😔 Good sleep seems hard to come by these days...
🤗

@actuallyautistic

Tim_McTuffty , 25 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 220 , Tuesday 04/06/2024

My Pavlovian response got me up at 06:30, so hobbled down to breakfast.

The meds the Doc gave me yesterday are doing the biz as far as reducing the pain goes, if not the swelling.
It’s so nice to be able to walk again , even if it is only a shuffling gait!
The meds are also messing with my digestive system, had an egg butty for lunch which grumbled its way thru me this afternoon. So rather than a some ham & a bit of salad for tea it was soup, again !

Oh I hope this speed of recovery is maintained!

Final Thoughts.

Every thought I have at the moment is directed at getting my foot back to normal & not looking like a prop front the Elephant Man !

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

PixysJourney , 25 days ago

@Tim_McTuffty
Yay for the meds!! 😁
I hope you'll feel better soon... 🤗
And not eating too much can also be that you need less as you do less now? You burn less because you're more stationary? 😊

@actuallyautistic