lifewithtrees , to ActuallyAutistic group
@lifewithtrees@mstdn.social avatar

For team

Cc @actuallyautistic @actuallyadhd

“I trust myself”

lifewithtrees OP ,
@lifewithtrees@mstdn.social avatar

@actuallyautistic @actuallyadhd emotions are sensations in our bodies.

I had detached from believing the sensations my body was telling me foe a long time as I was told that I was too sensitive, so I shut it down and then lost trust in myself.

By leaning into my feelings, by noticing and focusing on my bodily sensations, I am learning to trust myself again from the inside out.

Doing so has helped me across many areas of life.

lifewithtrees OP ,
@lifewithtrees@mstdn.social avatar

@actuallyautistic @actuallyadhd this video on avoidant attachment explains in a few steps what I've been doing without realizing it was what I was doing

https://youtu.be/mbhe5kR_soQ?feature=shared

More to go but glad to feel more on the road to wellness

PixysJourney , to ActuallyAutistic group
@PixysJourney@beige.party avatar

Question to fellow folks... :confusedparrot:

For what sort of toots could I use hashtags like or the previous two I just used?

I Toot quite a bit about me and my quirky way life. But I never really know if I "should" add any ND hashtags as the "silly" things I Toot about are quite normal to me. If that makes sense 🤔...

I'm proud enough, these days, of who I am. But I wonder if and when it would be good to add some of these tags... Maybe it could help connect with other peeps like me 😇.

Fankoos 🫶🏻 for your help! 🌸

@actuallyautistic

:boosts_ok_gay:

PixysJourney OP ,
@PixysJourney@beige.party avatar

@Tooden
That's me for sure! 😁
And thank you! 🌸
I'll do my best and try to use the tags when I'd like to reach fellow auties 😉
@pathfinder @actuallyautistic

PixysJourney OP ,
@PixysJourney@beige.party avatar

@jaymy
Thank you 🌸
That's indeed a good way of looking at it.
Use it as an invite for conversation. 😊

@Tooden @pathfinder @actuallyautistic

ashleyspencer , to ActuallyAutistic group
@ashleyspencer@autistics.life avatar

Autistic burnout + untreated ADHD =

impulse control issues + inability to force yourself to do anything + drained by no ability to function

Lots of walking pass a mess unable to make yourself clean it, then blame yourself for it.

Distracted, can't focus enough to do fun things and/or take care of yourself.

Forgetting everything. So burned out you can't remember important things + made worse by ADHD.

1/3

@actuallyautistic

ashleyspencer OP ,
@ashleyspencer@autistics.life avatar

@MaJ1 @actuallyautistic it’s worth it to accept help. Why struggle when you don’t have to, you know? I was in denial about my ADHD diagnosis for years, despite 2 diagnosis. So sometimes whatever holds us back from getting help gets in the way, but it could be worth it for you to help improve what you go through. :RedHearts:

MaJ1 ,
@MaJ1@mastodonapp.uk avatar

@ashleyspencer @actuallyautistic Honestly I’m not in denial, it was never something that added up for me & my wife - a mental heath social worker , is adamant that I’m not. (That said she never caught that I was autistic & we’ve been together more than 20 years 🙄🤦‍♂️ ) (1/2)

lifewithtrees , to ActuallyAutistic group
@lifewithtrees@mstdn.social avatar

A job post that explicitly requires someone with "high executive functioning"

Is this ?

@actuallyautistic @actuallyadhd

therivercrow ,
@therivercrow@tech.lgbt avatar

@lifewithtrees @actuallyautistic @actuallyadhd I don't know where you are but I'm pretty sure that would be illegal here, depending on how "executive function" is interpreted.

noam ,
@noam@libranet.de avatar

@lifewithtrees Not necessarily ableism. I don't know what they mean by 'high executive functioning' and how that relates to the job.

Richard_Littler , to ActuallyAutistic group
@Richard_Littler@mastodon.social avatar

If you've ever wondered what it's like being autistic with ADHD, it's a bit like this for me. (I always assumed everybody thought like this).


@actuallyautistic

ALT
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  • andrewhinton ,
    @andrewhinton@jawns.club avatar

    @Richard_Littler @actuallyautistic All it needs is an earworm song simultaneously playing in the background + a back-seat commentator voice freaking out that I’m maybe going off the rails in this conversation and it’s 100% accurate for me

    EndlessMason ,
    @EndlessMason@hachyderm.io avatar

    Pretty sure I got it, but can you pop it in an email so we can refer back to it later?

    @Richard_Littler @actuallyautistic

    btaroli , to ActuallyAutistic group
    @btaroli@federate.social avatar

    Today. Was. Just. Too. Much.

    Endless work meetings. Slack. Interruptions. HOA Committee Texts. School meetings. School district meetings. Music lesson.

    At some point at about 3pm I just had enough. And when this happens I tend to leave chats. Cancel or ignore messages or meetings.

    I have to for my sanity. I have learned that if I push on I truly burn out and am not useful for anyone.

    Why does our society encourage this???

    @actuallyautistic

    janisf ,
    @janisf@mstdn.social avatar

    @btaroli @actuallyautistic I'm not sure our society encourages that, specifically, so much as it's been propagated that hard work is how you move up the hierarchy (earn money, be competitive), while not tuning into the gratis labor that parents have to do.

    Back in the day, the economic model of traditional family labelled parenting a FT job, and good jobs paid for a whole family, or so the story went. It's now an antiquated model, but you can still see it on your tax forms.

    janisf ,
    @janisf@mstdn.social avatar

    @btaroli @actuallyautistic Set your boundaries ahead of time if at all possible. There are also some really great tips and stories on r/SingleParents.

    It's hard. Take care of your health, though, because this moment of life will pass more quickly than you can imagine, and one notable thing you'll have to show for it is the state of your body.

    autism101 , to ActuallyAutistic group
    @autism101@mstdn.social avatar

    I read about a new detailed map of the human brain. As expected, the "normal brains" were contrasted with "disordered" ones and how eventually they might learn "what's wrong" with them.

    Autistic brains are just different, not "wrong".

    @actuallyautistic

    yuki2501 ,
    @yuki2501@hackers.town avatar

    @autism101 @actuallyautistic Next up you'll see brains of the Aryan race compared with brains of inferior races. Calling it.

    sal ,
    @sal@brain.worm.pink avatar
    hosford42 , to ActuallyAutistic group
    @hosford42@techhub.social avatar

    This could be the connection between Ehlers-Danlos and neurodivergence. (People with EDS, like me, are 7 times as likely to be autistic and 5 times as likely to have ADHD -- also like me.)

    Cartilage-Like Structures Key to Brain Plasticity - Neuroscience News
    https://neurosciencenews.com/brain-plasticity-memory-cs6-26042/








    @autistic[email protected]
    @neurodivergence
    @actuallyautistic
    @eds

    ScottSoCal ,
    @ScottSoCal@computerfairi.es avatar

    @androcat

    I've mostly heard "idiopathic", which is medical for "we don't know why".

    @Zumbador @miaoue @hosford42 @cykonot @autistic[email protected] @neurodivergence @actuallyautistic @eds

    Zumbador ,
    @Zumbador@mefi.social avatar

    @ScottSoCal

    "We don't know why" seems a lot better than a term can be understood to mean "You're making it up"

    @androcat @miaoue @hosford42 @cykonot @autistic[email protected] @neurodivergence @actuallyautistic @eds

    KitMuse , to ActuallyAutistic group
    @KitMuse@eponaauthor.social avatar

    I know people with estrogen have said their ADHD gets worse during perimenopause/menopause, but I'm wondering if people with testosterone 50+ also notice their Autism/ADHD symptoms getting worse. Especially more "inattentive"/stuck in their thoughts.

    I feel like we really need more research on all of this.

    @actuallyautistic @neurodiversity

    KitMuse OP ,
    @KitMuse@eponaauthor.social avatar

    @randomgeek @actuallyautistic @neurodiversity Thank you so much! That is immensely helpful.

    KitMuse OP ,
    @KitMuse@eponaauthor.social avatar

    @pathfinder @randomgeek @actuallyautistic @neurodiversity Thank you! That's exactly what it feels like as his spouse. (It very much DOES NOT feel like what my mother dealt with, for example.) I will share this with him and see if it resonates.

    ashleyspencer , to ActuallyAutistic group
    @ashleyspencer@autistics.life avatar

    For AuDHD:

    Which terms do you prefer to use?

    Do you use ‘have’ or ‘I am’ to describe your autism and ADHD?

    Personally, I’m the first one and use ‘I am’ to describe both.

    Just curious to see how common each one is. 🙂

    @actuallyautistic
    @audhd

    hauchvonstaub ,
    @hauchvonstaub@nrw.social avatar

    @ashleyspencer

    I mostly use I'm autistic and have ADHD, because there isn't an established term for the property of being someone with ADHD yet.
    I know about terms like "kinetic" or "pelagic", but I don't want to call myself something that I then always either have to explain, or risk people completely misunderstanding what I even said.
    Another reason is, that saying "I'm ADHD" feels comparable to saying "I'm ASD", like I'm just identifying with a disorder.

    @actuallyautistic @audhd

    artemis ,
    @artemis@dice.camp avatar

    @hauchvonstaub @ashleyspencer @actuallyautistic @audhd
    I really wish we had a better term for ADHD for this purpose. I say "I have ADHD" for the same reasons you do, but I don't really like identifying ADHD as something I "have" when it's literally part of who I am, not an optional add-on.

    lifewithtrees , to ActuallyAutistic group
    @lifewithtrees@mstdn.social avatar

    “What do you want to do 5 years from now?”

    🤔

    😬

    🤯

    I am having a difficult time visioning 5 years from now, what I want to do and then how to get there.

    Some of this is due to the chaos of the last few years, but I also think it could be a challenge due to

    Also I am 42 so midlife stuff?

    That all said, how do you vision 5 years from now?

    @actuallyadhd @actuallyautistic

    Susan60 ,
    @Susan60@aus.social avatar

    @lifewithtrees @actuallyadhd @actuallyautistic

    My life has been one of chapters, written by someone who didn’t start the book with a plan of the narrative arc, or if they did, they kept changing their mind.

    I’m feeling better about myself & my life than I’ve ever done before, having truly realised my autistic identity in the last year, at 63, but I couldn’t tell you what I’ll be doing in 5 years. There are too many variables. What’s the point of even trying to work that out?

    That question should be banned from job interviews.

    However a desired direction is good. Not necessarily a goal, an endpoint, but a direction. I do think we make better decisions when we have some type of path in mind. For example, “I want to be a kinder person” leads to wanting to be kinder to oneself which might lead to therapy etc.

    E_Briannica ,
    @E_Briannica@sfba.social avatar

    @actuallyautistic @lifewithtrees @actuallyadhd I think NTs just want you to have ANY answer, because they think being stagnant means going backward. Means you’re a lazy drug addict waste of space. If you’re not constantly moving forward, you’re falling behind. . If asked at a job, talk about being promoted twice and acquiring new business management skills. Just have answers that sound good, no one expects you follow through on them.

    pinkpenguin , to ActuallyAutistic group
    @pinkpenguin@sakurajima.moe avatar

    the autistic self help book i'm listening to just told me to quit my overpaid finance job to pursue my dream of a second hand hello kitty store

    i have never managed to hold down a single job for longer than 18 months, and none of those ever paid me more than 15 bucks an hour

    i wanna punch somebody in the face

    @actuallyautistic

    ItsTrainingCatsAndDogs ,
    @ItsTrainingCatsAndDogs@kolektiva.social avatar

    @pinkpenguin @actuallyautistic a secondhand Hello Kitty store is an objectively good idea.

    Susan60 ,
    @Susan60@aus.social avatar

    @pinkpenguin @actuallyautistic

    Understandably.

    lifewithtrees , to ActuallyAutistic group
    @lifewithtrees@mstdn.social avatar

    The older I get, the more I find being in the city to be overwhelming. There are so many people and sounds and smells and it is all sensory overload.

    Manhattan (and especially MoMA!) was interesting for the day but I’m ready to get home to the forest.

    I am back in my hotel room with white noise going and ordered food I make at home for delivery to calm my nervous system.

    @actuallyautistic

    punishmenthurts ,
    @punishmenthurts@neurodifferent.me avatar

    @pathfinder @lifewithtrees @actuallyautistic
    .
    I guess I don't tell myself, "I love the city," but I don't hate it. I don't have dreams of a place of my own in the country, I suppose from forever dreaming of human connections, I have zero survvivalist leanings

    HikerGeek ,
    @HikerGeek@mas.to avatar

    @lifewithtrees @actuallyautistic

    I never thought I had a NY accent until I moved to Indiana for a couple of years but evidently I have a bit of Bronx-y accent (from Westchester). They would make fun of me for saying caw fee (coffee) and dawg (dog).

    Anyway with my accent giving me away many people shared their stories like yours about visiting NYC. Many included going back to the hotel and curling up in a quiet bed. One was of getting frozen in the crosswalk in Times Square due to overload.

    olena , to ActuallyAutistic group
    @olena@mementomori.social avatar

    What some people don’t seem to be able to understand is that for the ones with executive disfunction number of steps matters a lot.

    I just put away all my dried laundry aside of duvet cover.

    Why? Because for all the other things it’s easy one-step task: grab all the knickers and shove them into the drawer, get the home clothes and put it into home clothes cube box(that cubed Ikea shelf is such a helper for people like me, I just have a cube for every thing).

    But the linen shelf is at the top of the bathroom closet, and it’s almost full. So I need a stepladder to be able to put the duvet cover there(I can try to shove it there without, I kinda reach the shelf itself, but in its current state the cover is likely to fall from there, and probably with some other things, so that would upset me which I am not ready to deal with now).

    But the stepladder is now occupied by my winter shoes which were drying there before I put them away for summer.
    But to put them away I need to get two big boxes from under my bed, empty one by putting everything that is there into the other one, put all the shoes there, put the boxes back under the bad, ensure all the boxes there are arranged in a way that is allowing my cat to play in that labyrinth, and probably clean up after that as I suppose there’s going to be a few dust bunnies.

    Gosh, I got tired by just typing all that.

    Going through all those steps may bot take too much time(if I don’t get distracted by something, including the urge to sort everything perfectly), but the very thought of going through all those steps just discourages me so much that I can’t find energy to start. “It’s just one duvet cover!” - they say. “It’s a shitton of steps!” - I answer.

    Well, the cover is drying in a way that obscures a view from my bed which irritates me enough to maybe develop enough anger to put it away in the weekend.





    @actuallyautistic

    glowl ,
    @glowl@chaos.social avatar

    @olena @actuallyautistic feeling called out, as i just cleaned up half the kitchen.

    but taking the key and laundry basket, going down to the basement to hang the laundry for drying and walking up again is just to much right now.

    Drude ,
    @Drude@literatur.social avatar

    @olena @actuallyautistic Today, I asked my SO to do the second half of a task, because it were too many steps and I felt overwhelmed. After doing the first half (about 5 steps, maybe), it didn't feel overwhelming anymore to do the last 4 steps. It's sooo strange how our brains work.

    autism101 , to ActuallyAutistic group
    @autism101@mstdn.social avatar
    Lipidolith ,
    @Lipidolith@mastodon.social avatar

    @autism101 @actuallyautistic
    Everyday life of a and
    🙄
    My gifted brain: Hey, look, something new, exciting, challenging!! Yay!!!🥳🥳🥳
    My autistic brain: Now, wait a sec.... hey, what you're doing??? You know, we can't deal with that?!?!
    My gifted brain: Oh, shut up, this is sooo cool!!!💃🎵🎶🎵
    My autistic brain: *sigh
    Me: thanks guys... *overwhelmed *shutdown
    😒😔🤯

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