autism101 ,
@autism101@mstdn.social avatar

Did you know?

Some U.S. states have registries and laws requiring that mental health professionals and physicians register autistic clients. They can be fined, disciplined, or lose their license if they don't report.

@actuallyautistic

image: NDDoH

spika ,
@spika@neurodifferent.me avatar

@autism101 @actuallyautistic I'm from a registry state (NH) and it's one of the reasons I feel hesitant to pursue an official diagnosis.

The registry doesn't collect identifying data, thankfully. However, the idea is to collect data so legislators have a picture of how many people have been diagnosed, at what age, etc to be better able to make legislative decisions regarding what programs are needed.

In theory that sounds like noble intentions, but trouble being, I don't exactly have a lot of trust in the state to fund programs that are helpful.

autism101 OP ,
@autism101@mstdn.social avatar

@actuallyautistic

Here is New Jersey’s analysis of Autism Registries: https://nj.gov/health/fhs/autism/documents/2016%20overview%20of%20States%20Autism%20Registries%20Brief.pdf

and North Dakota’s response to questions from mandatory reporters: https://www.hhs.nd.gov/sites/www/files/documents/DOH%20Legacy/ASD_Mandatory_Reporters_FAQ.pdf

And a petition for the ACLU to fight mandatory autism databases for those who are interested: https://www.change.org/p/tell-the-aclu-to-fight-mandatory-autism-databases

anomaluridae ,
@anomaluridae@piaille.fr avatar

@autism101 @actuallyautistic for what purpose ?

autism101 OP ,
@autism101@mstdn.social avatar
matthewtoad43 ,
@matthewtoad43@climatejustice.social avatar

@autism101 @anomaluridae @actuallyautistic Well the paper says the reasons are:

  • Plan for policy and services.
  • Monitor the prevalence of a disorder.
  • Link individuals to services and resources.

And maybe that's true.

But given the occasional but increasing political weaponisation of autism, especially in the intersection with trans rights, but also sometimes in other areas, we should be aware of this, and resist any attempts to weaken our medical privacy.

adelinej ,
@adelinej@thecanadian.social avatar
dramypsyd ,
@dramypsyd@ohai.social avatar
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